Genetic Links

Genetic Conditions Resources

The Genetics Program for Nursing Faculty at Cincinnati Children's Hospital Medical Center recommends the following resources about genetic conditions.

• Online Cancer Resources
• American Association for Cancer Research
• Breast Cancer Network
• Breast and Ovarian Cancer
• Welcome to Wide Smiles! Cleft Lip and Cleft Palate Resource
• Cystic Fibrosis Foundation
• Cystic Fibrosis 
• National Association for Down Syndrome (NADS)
• The National Down Syndrome Society
• Down Syndrome: Health Issues  
• Fetal Alcohol Syndrome Resources
• Fetal Alcohol Syndrome
• FRAXA Research Foundation (Fragile X)
• Fragile X Syndrome
• Heart Disease Links
• American Heart Association
• National Hemophilia Foundation
• Huntington's Disease Society of America (6/1/99)
• Caring for People with Huntington's Disease  
• National Marfan Foundation Home Page
• Disorders Similar to Marfan
• The MPS Society (Mucopolysaccharide Diseases)
• Muscular Dystrophy Association
• Sickle Cell Disease
• The Sickle Cell Information Center
• Association for Spina Bifida and Hydrocephalus
• Spina Bifida Association of America Home Page
• Children with Spina Bifida: A Resource Page for Parents
• International Federation for Hydrocephalus and Spina Bifida
• Spina Bifida / Syrinx / Hydrocephalus Home Page at MGH / Harvard
• The National Alliance for Research on Schizophrenia and Depression
• Neurofibromatosis Inc. Home Page
• The National Neurofibromatosis Foundation Inc.
• Neurofibromatosis Resources
• Obsessive Compulsive Disorders-Related Psychiatric Disorders in Children and Adolescents
• Osteogenesis Imperfecta Foundation
• Of Interest to Clefts due to Pierre Robin
• Polycystic Kidney Research Foundation
• The Polycystic Kidney Disease Information Page
• Prader-Willi Syndrome Association (USA)
• Joint Center for Sickle Cell and Thalassemia
• The Turner's Syndrome Society of the United States
• Velo-Cardio-Facial Syndrome Educational Foundation
• Clinical Genetics Photographs

Contact Us

Fax: 513-636-0124
Email: gepn@cchmc.org

 

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Genetics Education Program for Nurses

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