Genetic Education Program

Cynthia A. Prows, MSN, CNS, FAAN
Principal Investigator/Program Director

Ruthann Blough, PhD
Co-investigator / Content Expert

Carol Hetteberg, MSN, RN
Co-investigator / Instructor

Robert J. Hopkin, MD
Co-investigator / Content Expert

Kathy K. Latta, MSN, RN
Co-investigator / Education Specialist

Anne Lovell, MSN, CNS
Co-investigator / Content Expert

William Nichols, PhD
Co-investigator / Content Expert

Auvo Reponen, PhD
Co-investigator / Systems Analyst

Howard M. Saal, MD
Co-investigator / Content Expert

Nancy Steinberg Warren, MS, CGC
Co-investigator / Content Expert

Nancy Bowers, M.S.N.
University of Cincinnati Raymond Walters College
Cincinnati, Ohio

Corporate Communications Department
Children’s Hospital Medical Center
Cincinnati, Ohio

eHealth Department
Children’s Hospital Medical Center
Cincinnati, Ohio

Sonia Cunningham, Ed.D.
University of Texas
Brownsville, Texas

Carol Deets, Ph.D., R.N.
University of Cincinnati
Cincinnati, Ohio

Nancy Fisher, R.N., M.D., M.P.H.
Seattle, Washinton

Steve Gentle
Children’s Hospital Medical Center
Cincinnati, Ohio

Gregory A. Grabowski, M.D.
Children’s Hospital Medical Center
Cincinnati, Ohio

Dale Halsey Lea, R.N., M.P.H., F.A.A.N.
Foundation for Blood Research
Scarborough, Maine

Jean Jenkins, M.S.N., R.N.
National Cancer Institute
Bethesda, Maryland

Nancy Johnson, Ph.D., M.S.
Research and Statistical Consulting
Cincinnati, Ohio

Carole Kenner, DNS, R.N., F.A.A.N.
University of Cincinnati
Cincinnati, Ohio

Felissa Lashley, Ph.D., R.N., F.A.A.N.
Southern Illinois University at Edwardsville
Edwardsville, Illinois

Mara McCalmont
McCalmont and Associates, Inc.
Cincinnati, Ohio

Rita Black Monsen, D.S.N., R.N.
Hot Springs, Arkansas

Jeffrey C. Murray, M.D.
University of Iowa
Iowa City, Iowa

Carol Patton, Dr.P.H., C.R.N.P.
Duquesne University
Pittsburgh, Pennsylvania

Susan M. Powers, Ed.D.
Indiana State University
Terre Haute, Indiana

Sanger and Eby Design
Cincinnati, Ohio

Colleen Scanlon, J.D., R.N.
Catholic Health Initiatives
Denver, Colorado

Janet K. Williams, Ph.D., R.N.
University of Iowa
Iowa City, Iowa

Carol Hetteberg, MSN, CNS
Nurse Education Specialist
Cincinnati Children’s Hospital Medical Center

Cynthia Prows, MSN, CNS
Director, Genetics Education Program for Nurses
Cincinnati Children’s Hospital Medical Center

Nancy Bowers, RN, MSN,CNS
University of Cincinnati Raymond Walters

Cecile Renee Byfield, MSN, RN, FNP
Drexel University, Philadelphia

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Quanetta T. Edwards, DNS
Howard University, DC

Marcia Hern, EdD
Texas Woman’s University, Denton

Jean Jenkins, PhD
National Cancer Institute, NIH

Vanessa Johnson, Ph.D
Langston University, Tulsa

Stacy Sherwin, RN, MSN, CCRN
Salish Kootenai College, Pablo MT

Ida Spruill, BSN, MSN, MSW
National Black Nurses Association

Marcia Van Riper, PhD
University of North Carolina, Chapel Hill

Tina Weitkamp, MSN, RNC
University of Cincinnati

Linda Workman, PhD
Case Western Reserve University, Cleveland

Authors

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

Dale Halsey Lea, MPH, RN, APNG, FAAN
Foundation for Blood Research

Consultants / Advisors – Planning Content

Carole Kenner, DNS, RN
University of Illinois, Chicago

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Marci Aguilar, MSN, RN
University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Module Reviewers

Robert J. Hopkin, MD
Division of Human Genetics, Cincinnati Children's Hospital

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Marci Aguilar, MSN, RN
University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Joan Weiss, MSW
Genetics Alliance

Judith Johnson, PhD
University of Southern Maine

Programmers

Auvo Reponen, PhD
Registration & evaluation databases, Cincinnati Children's Hospital Medical Center

Jo Ann Monday
Module Designer Cincinnati Children's Hospital Medical Center

Authors

Dale Halsey Lea, MPH, RN, APNG, FAAN
Foundation for Blood Research

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

Consultants / Advisors – Planning Content

Carole Kenner, DNS, RN
University of Illinois, Chicago

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Marci Aguilar, MSN, RN
University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Module Reviewers

Robert J. Hopkin, MD
Division of Human Genetics, Cincinnati Children's Hospital

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Joan Weiss, MSW
Genetics Alliance

Judith Johnson, PhD
University of Southern Maine

Quanetta T. Edwards, DNSc, MSN, MS, RN
Howard University

Programmers

Auvo Reponen, PhD
Registration & evaluation databases, Cincinnati Children's Hospital Medical Center

Jo Ann Monday
Module programmer, Cincinnati Children's Hospital Medical Center

Authors

Dale Halsey Lea, MPH, RN, APNG, FAAN
Foundation for Blood Research

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

*The authors would like to thank Elizabeth Thomson, MS, RN, CGC, FAAN for her valuable advice & guidance during the development of objective 2

Consultants / Advisors – Planning Content

Carole Kenner, DNS, RN
University of Illinois, Chicago

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Marci Aguilar, MSN, RN
University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Module Reviewers

Robert J. Hopkin, MD
Division of Human Genetics, Cincinnati Children's Hospital

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Carol Hetteberg, MSN, RN
Education Specialist, Cincinnati Children's Hospital Medical Center

Migdalia V. Rivera-Goba, EdD, RN
National Institutes of Health Clinical Center

Charmaine D. M. Royal, PhD
Howard University National Human Genome Center

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Programmers

Auvo Reponen, PhD
Registration & evaluation databases, Cincinnati Children's Hospital Medical Center

Jo Ann Monday
Module programmer, Cincinnati Children's Hospital Medical Center

Authors

Sara Rankin, MS
University of Cincinnati Center for Environmental Genetics Community Outreach and Education Program

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

Katherine Brown, PhD
University of Cincinnati Center for Environmental Genetics, Community Outreach and Education Program

Nancy Steinberg Warren, MS, CGC
University of Cincinnati College of Allied Health Professionals, Genetic Counseling Program

Consultants / Advisors – Planning Content

Carole Kenner, DNS, RN
University of Illinois, Chicago

Janet Williams, PhD, PNP, CGC, RN
University of Iowa

Marci Aguilar, MSN, RN
University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN
University of Texas Brownsville

Jean Jenkins, PhD, RN
National Cancer Institute, NIH

Module Reviewers

Kim N. Dietrich, PhD
Epidemiology and Biostatistics, Department Environmental Health, University of Cincinnati

Jennifer Gamm, MS, CGC
Division of Human Genetics, Cincinnati Children's Hospital

Dale Halsey Lea, MPH, RN, APNG, FAAN
Foundation for Blood Research

Carol Hetteberg, MSN, RN
Division of Human Genetics, Cincinnati Children's Hospital

Robert J. Hopkin, MD
Division of Human Genetics, Cincinnati Children's Hospital

Marsha Wills-Karp, PhD
Department of Immunobiology, Cincinnati Children's Hospital

Programmers

Auvo Reponen, PhD
Registration & evaluation databases, Cincinnati Children's Hospital Medical Center

Jo Ann Monday
Module programmer, Cincinnati Children's Hospital Medical Center

Authors

Carol Hetteberg, MSN, CNS
Cincinnati Children's Hospital Medical Center

Jean Jenkins, PhD, RN, FAAN
National Human Genome Research Institute, NIH

Erin Harvey, MS, CGC
National Coalition for Health Professional Education in Genetics

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

Readers

Crystal Wolfe (Karen's story), Cincinnati Ohio

Robert J. Hopkin, MD (Kevin's story), Cincinnati Children's Hospital Medical Center

Laurie Bailey, MS, CGC (Kim's story), Cincinnati Children's Hospital Medical Center

Jessica Everett, MS, CGC (Mary's story), Cincinnati Children's Hospital Medical Center

Module Reviewers

Trisha Brown, MS, CGC, LabCorp

Sarah Sheets Cook DrNP, RN-CS, Columbia University

Carole Kenner, DNS, RN FAAN, University of Oklahoma

Barbara Lerner, MS, CGC, Brandeis University

Catherine Ruhl, CNM, MS Association for Women's Health and Neonatal Nursing

Programmers

Jo Ann Monday
Module programmer, Cincinnati Children's Hospital Medical Center

Auvo Reponen, PhD
Registration and evaluation databases, Cincinnati Children's Hospital Medical Center

Project Advisors

Carole Kenner, DNS, RN FAAN, University of Oklahoma

Janet Williams, PhD, PNP, CGC, RN, University of Iowa

Marci Aguilar, MSN, RN, University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN, University of Texas Brownsville

Jean Jenkins, PhD, RN, National Cancer Institute, NIH

Authors

Cynthia A. Prows, MSN, CNS
Cincinnati Children's Hospital Medical Center

Shannon Saldana, PharmD, MS, BCPP
Cincinnati Children's Hospital Medical Center

Module Reviewers

Beth Balkite, MS, CGC, GlaxoSmithKline

Kathleen Calzone, RN, MSN, APNG, FAAN, National Cancer Institute

Erin Harvey, MS, CGC, National Coalition for Health Professional Education in Genetics

Robert J. Hopkin, MD, Cincinnati Children's Hospital Medical Center

Melanie Myers, PhD, CGC, University of Cincinnati

Project Advisors

Carole Kenner, DNS, RN FAAN, University of Oklahoma

Janet Williams, PhD, PNP, CGC, RN, University of Iowa

Marci Aguilar, MSN, RN, University of Texas Health Science Center, San Antonio

Sonia Cunningham, MSN, PNP, RN, University of Texas Brownsville

Jean Jenkins, PhD, RN, FAAN, National Human Genome Research Institute, NIH

Programmers

Jo Ann Monday
Module programmer Cincinnati Children's Hospital Medical Center

Auvo Reponen, PhD
Registration and evaluation databases Cincinnati Children's Hospital Medical Center