Bequest Will Help Kids With NF

For more than three decades, Dolores Goldfinger and her husband, Gerald, watched their beloved daughter Susan bravely battle neurofibromatosis (NF), a devastating genetic disorder that can cause complications such as extreme pain, bone abnormalities, learning disabilities and tumors. Susan was diagnosed with NF at just 18 months old and passed away in 2002 at the age of 34.

Dolores proudly remembers her daughter – a teacher with a master’s degree despite being diagnosed with learning disabilities in the third grade – and all that she accomplished in spite of the NF. And she is grateful for the care she received at Cincinnati Children’s.

“We received magnificent care at Cincinnati Children’s,” says Dolores. “They were here 24/7 for all of us.”

For many years, Dolores and Gerald generously supported the medical center. Before Gerald died in 1997, he included Cincinnati Children’s in his will. Dolores decided to do the same, adding a bequest to support clinical care of NF patients at the hospital.

“We will never be able to pay back everything they did for us,” Dolores says. “Putting Cincinnati Children’s in our wills is just a small token of our appreciation and what we can do to give back.”

Dolores and her husband did their part to improve awareness and treatment options for NF. They were heavily involved in creating support systems for families like theirs, including helping to establish the NF Center at Cincinnati Children’s in 1986. Dolores continues to reach out to families in the community affected by NF and is pleased with the family-centered care provided today by Cincinnati Children’s.

“The NF Center has evolved beautifully and it provides a fantastic package of care to families,” she says. “Most families would not be able to support their child with NF without the positive input of the whole staff, and their willingness to reach out and help.”

The NF Center is a valuable resource for patients and families, providing diagnosis, treatment and research. Because the disease can be complicated and affect the body in a multitude of ways, the clinic offers a multidisciplinary approach to treatment with a team of specialists from orthopaedics, developmental and behavioral pediatrics, oncology and radiology, among others.

“Gifts like Dolores’ can help us care for kids in so many ways,” says Anne Lovell, RN, MSN, NF Center coordinator. “Any amount we receive, large or small, really makes an impact.”


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