After your child is stable, he or she will require less intense monitoring. The nurses who will take care of your child during this part of the recovery specialize in the care and education of children and their families following a liver transplant. You will continue to see the members of the liver transplant team on a daily basis. Every day the medical team will make rounds, examine your child and be available to discuss any changes in your child's health. During rounds, the team will make recommendations for care and discuss progress toward discharge from the hospital.
Our goal during this part of the hospitalization is to get your child feeling well again. The recovery process varies from person to person, depending upon how many problems the patient had prior to transplantation.
Your primary job during this period is to learn about home transplant care. Your liver transplant coordinator will review and provide you with a home care education packet. You will learn about:
The new medications your child will receive
How to care for your child's incision sites, central line (a long-term IV) and external drains
If your child will require nursing care at home, you will meet with the home health care nurses who will teach you about the care for central lines or feeding tubes and pumps.
The nursing staff will be available at all times to answer questions and help you during this important transition to home care.
The liver transplant coordinator helps you obtain your child's medicines and reviews them with you before you leave the hospital. The coordinator also assists you in setting up a medication and task schedule.
At discharge (when you leave the hospital), post-transplant clinic appointments and times for having lab work done (blood draws) are scheduled.