• Health Insurance, Healthcare Reform

    Health insurance benefits are often confusing to read and difficult to appeal, especially for a family with a child with special healthcare needs. Health insurance terms such as "medical necessity" and "skilled nursing" are difficult to understand and may be interpreted differently by each insurer. Families often lack the expertise, experience and clout to successfully deal with insurance issues and this can add significant emotional and financial stress.

    Ask to see your entire policy online or in print. This detailed document often provides information that better explains and occasionally contradicts what you thought was covered.  Medications are often covered by a separate policy and the covered medications and copay may change during your coverage.  Most policies cover all medications used in the hospital or emergency room as part of your medical coverage.  However, medications prescribed for you as an outpatient are controlled by the “pharmacy” part of your policy and thus a medication that was fully covered and working well in the hospital may not continue to be covered or have a high copay once you are discharged. You can ask your physician to submit all medications and other treatments such as therapies to your insurance company prior to discharge so that you know what is covered or how much your total “out of pocket” cost will be.

    Your physician, social worker, discharge coordinator, and hospital financial aid office can assist you in this process. Their knowledge can be extremely useful but sometimes you have to personally seek their assistance.

    Information included throughout our directory can help you understand the process, realities, rights, and available resources. You can find sources of financial assistance including how to obtain free or discounted medications

    The Complex Care Center at Cincinnati Children's connects patients and families with web sites that provide general information, checklists, strategies and sample letters to assist you with health insurance issues.

  • Health organizations often provide current information on disability information, health policies, useful statistics and news items of special interest.

    • Healthcare.gov has current, comprehensive information including understanding the new Affordable Care Act 2010, insurance options, coverage for people with disabilities and differences in coverage between states. You can read about the new Pre-Existing Condition Insurance Plan which will be available in every state, but may vary depending on your state.
    • American Academy of Pediatrics has current information on health care reform issues.
    • Catalyst Center is dedicated to improving health care and is funded by the federal Maternal and Child Health Bureau, Health Resources and Services Administration, US Department  of Health and Human Services. They have Affordable Care Fact Sheets for families.
    • Center for Health Care Strategies is a nonprofit health policy resource center dedicated to improving health care quality for low-income children and adults, people with chronic illnesses and disabilities, frail elders, and racially and ethnically diverse populations experiencing disparities in care. They work with state and federal agencies, health plans, providers, and consumer groups to develop innovative programs that better serve people with complex and high-cost health care needs.
    • Commonwealth Fund has articles on health reform and other health care issues in the news.
    • Disabled World is an online magazine reporting current international disability news.
    • FamiliesUSA has a comprehensive series of articles on the the Affordable Care Act
    • The Future of Children, a collaboration between Princeton University and the Brookings Institution, publishes research reports, newsletters and resources on a variety of issues related to children, including health and education.
    • Health Foundation of Greater Cincinnati has detailed information about the health reform law, timelines and resources.
    • Health Law Helper from Consumer Reports provides free updates on health care reform.
    • Kaiser Family Foundation provides current and reliable information on national health issues to policymakers, the media and the general public.
    • Kaiser Health News has updated information on health care reform legislation.
    • The Nation's Health has information on health care reform timelines.
    • Pew Research Center provides current information, research and data on issues and trends in health care.
    • Robert Wood Johnson Foundation partnered with George Washington University to provide current reports on health care reform.
    • Stand Up for Health Care has updated information on issues and legislation.
    • Catalyst Center provides information on improving health care insurance coverage for children and youth with special health care needs.
    • Centers for Medicare and Medicaid Services provides comprehensive information on eligibility and coverage.
    • Children and Youth with Special Health Care Needs are supported in each state through Title V government funding. A directory of local contact information and services is available.
    • Children's Health Insurance Program (CHIP) is federally funded health insurance designed to provide support to families and children up to the age of 19.
    • Cincinnati Children's Financial and Medical Assistance Programs for Families has counselors who can help arrange for payment plans, discounts and financial assistance for eligible patients and families. The Hamilton County Tax Levy provides medical coverage for indigent care through the University of Cincinnati Hospital and Cincinnati Children's. For further information and an application, please contact Patient Financial Services at Cincinnati Children's, 513-636-4427.
    • CoverCincy provides information on health insurance coverage, paying hospital bills, help with prescription medication and local community health centers.
    • Cover the Uninsured provides guides for finding health insurance coverage in each state.
    • Families USA has information on public and private sources of health insurance as well as a series of informative articles on health insurance.
    • Georgetown University Health Policy Institute offers a consumer guide to getting and maintaining health insurance.  Guides summarize consumer protection by state, including Ohio, Indiana and Kentucky.
    • Healthcare Blue Book is an online consumer guide to help you determine fair prices in your area for healthcare services.    
    • Kaiser Family Foundation publishes A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan.     
    • National Health Law Program provides publications, notices of current and upcoming legislation, information on advocacy all related to health care issues.
    • National Institutes of Health provides comprehensive information about health insurance. 
    • Ohio Department of Insurance provides information on Health Maintenance Organizations (HMO) as an alternative to traditional insurance. An HMO will accept individuals during their Open Enrollment Period regardless of any pre-existing health conditions. They also provide a Guide to Health Insurance that explains different types of coverage.
    • United Healthcare Children's Foundation offers assistance grants for children's medical services not fully covered by health insurance. It helps families with private insurance afford ongoing therapies or medical costs. The goal is that it helps working families with high deductible plans or high copayments afford medical care. A household of 4 can make up to $100,000 a year and qualify and add $25,000 for each additional household member.
    • University of Washington School of Public Health has compiled a glossary of health care management terms for consumers.

    Find additional information on health insurance programs under Financial Assistance

    Many families depend on their insurance company to pay for expensive treatments, assistive technology and adaptive devices. Insurance denials can be appealed since decisions are sometimes made by an individual who may not be an expert on the condition or recommended treatment. It is important to know the fine details of your insurance policy.

    A strong letter of medical necessity or appeal can often make the difference in what an insurance company will cover. The physician or health care specialist writes the letter emphasizing how the individual's life will be affected by permitting or denying treatment. There are also rare situations when an attorney is needed. Alternative sources of funding may be available if the insurance coverage is inadequate or denied. These web sites provide sample letters, checklists, strategies and appeals process information. 

    • Medical Home Portal details the important components of an effective letter of medical necessity.  
    • Rifton Equipment offers a checklist for writing an effective letter of medical necessity, sample letters, and strategies on how to deal with the appeals process.