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Not all children with chronic debilitating illnesses can be managed at home and therefore require care in some type of long-term, or extended care, facility. These facilities are often necessary for multiple reasons, including:
The Complex Care Center provides information and resource to families to learn about residential options.
Choosing the right residential, or extended care, facility for a child can be difficult for families. Here are some important questions to ask when interviewing / researching a particular facility:
The Arc of Greater Cleveland has a helpful list of questions to ask a potential provider.
Hart-Supported Living Grant can provide financial support for individuals with disabilities to live in and participate in their communities.
Home of the Innocents, Kosair Charities Pediatric Convalescent Center, Louisville, Kentucky, serves medically fragile children, ages birth to 21. The skilled nursing facility provides short-term, long-term and respite care for children with severe developmental and/or physical disabilities, as well as ventilator dependency.
Nursing Home Compare is a tool that provides detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country.
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