• Cincinnati Children’s Builds International DIPG Registry

    A $205,000 gift to Cincinnati Children’s will be used to further develop the International DIPG Registry to advance efforts to find a cure for diffuse intrinsic pontine glioma (DIPG), the most common form of brainstem glioma in children.

    Approximately 300 children develop DIPG every year in North America and Europe. Currently, outcomes for most patients are poor, with a median survival of less than 1 year from diagnosis.

    The registry was created in 2011 by a collaborative of cancer researchers in North America, Europe, and Australia to collect basic information about DIPG patients, including medical histories, diagnostic images and biopsy results. Scientists hope to detect patterns in the data that can lead to improved treatments. Cincinnati Children’s is the coordinating center in North America.

    The gift was provided by The Cure Starts Now Foundation, The Jeffrey Thomas Hayden Foundation, The Pray~Hope~Believe  Foundation and the DIPG Collaborative. To date, more than $420,000 has been granted to the registry.

    “This represents our very best chance of advancing cancer research decades into the future by capturing the homerun spirit that originally cured so many cancers over 50 years ago. Too often, we tend to fight cancer as individual diseases, ignoring both the commonalities and the very experts that see possibilities and cure strategies that can affect all cancers, and thereby affect us all,” says Keith Desserich, founder of the DIPG Collaborative.

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