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A $205,000 gift to Cincinnati Children’s will be used to
further develop the International DIPG Registry to advance efforts to find a cure for diffuse
intrinsic pontine glioma (DIPG), the most common form of brainstem glioma in
children develop DIPG every year in North America and Europe. Currently,
outcomes for most patients are poor, with a median survival of less than 1 year
The registry was created in 2011 by a collaborative of
cancer researchers in North America, Europe, and Australia to collect basic
information about DIPG patients, including medical histories, diagnostic images
and biopsy results. Scientists hope to detect patterns in the data that can lead
to improved treatments. Cincinnati Children’s is the coordinating center in
The gift was provided by The Cure Starts Now Foundation, The Jeffrey Thomas Hayden Foundation, The
Pray~Hope~Believe Foundation and the
DIPG Collaborative. To date, more than $420,000 has been granted to the registry.
“This represents our very best chance of
advancing cancer research decades into the future by capturing the homerun
spirit that originally cured so many cancers over 50 years ago. Too often, we
tend to fight cancer as individual diseases, ignoring both the commonalities
and the very experts that see possibilities and cure strategies that can affect
all cancers, and thereby affect us all,” says Keith Desserich, founder of the
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