Resources
The Rheumatology Division at Cincinnati Children's Hospital Medical Center suggests contacting the local chapter of the Arthritis Foundation. in or near your community to obtain information about the Juvenile Arthritis Alliance (JAA).
The Juvenile Arthritis Alliance, which also has many chapters across the United States, is a national council which focuses on meeting the special needs of children with rheumatic arthritis conditions, their families and health professionals.
In addition to publishing informative brochures, video tapes and a quarterly newsletter, the JAA is also an advocate on both state and national legislative levels. An annual national conference each summer provides an opportunity for families to get together to learn and share. Please ask your social worker or nurse for membership information.
Other Resources
- American Academy of Pediatrics
- American Academy of Pediatrics, Section of Rheumatology
- American College of Rheumatology (ACR)
60 Executive Park South, Suite 150
Atlanta, GA 30329
404-633-3777 - American College of Rheumatology, Electronic Directory of Members
- Association of Rheumatology Health Professionals (ARHP)
60 Executive Park S. Suite 150
Atlanta, GA 30329
404-633-37777 - Arthritis Foundation - Ohio River Valley Chapter
The Arthritis Foundation will also have information on various rheumatic diseases as well as a variety or resources.
7124 Miami Avenue
Cincinnati, OH 45243
Phone: 513-271-4545
Toll Free: 800-383-6843 - Arthritis Foundation National Office
1330 Peachtree Street
Atlanta, GA 30309
404-872-7100 - American Juvenile Arthritis Organization (AJAO)
National Office
1330 West Peachtree Street
Atlanta, GA 30309
404-872-7100 - Childhood Arthritis and Rheumatology Research Alliance
Department of Pediatrics, Division of Rheumatology
300 Pasteur Drive, Boswell Building A081
Stanford, CA 94305-5208 - Clinical studies sponsored by National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- Family Resource Center
Families are welcome to call the Family Resource Center, toll free 1-800-344-2462 (ext. 7606) or 513-636-7606. The Family Resource Center will also have general information about growth and development, parenting issues, childhood health and safety. - Family to Family Network
The goal of the Family to Family Network is to link families with various rheumatic diseases in order to provide support and friendship.
513-636-9880 (1-800-344-2462, ext. 9880)- parent coordinator - Lupus Foundation of America, Inc.
2000 L Street, N.W., Suite 710
Washington, DC 20036
202-349-1155
Fax: 202-349-1156 - Myositis Association of America
1233 20th St. NW, Suite 402
Washington, DC 20036 - National Arthritis Foundation / Juvenile Arthritis Alliance
The Juvenile Arthritis Alliance of the Arthritis Foundation is devoted to serving the special needs of children, teens and young adults with childhood rheumatic diseases and their families.
1-800-283-7800 - National Office - National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892-2350 - National Institute of Health
9000 Rockville Pike
Bethesda, Maryland 20892 - Patient Information Topics, American College of Rheumatology
- Pediatric Rheumatology Collaborative Study Group (PRCSG)
- Pediatric Rheumatology International Trials Organization, where families can get information on pediatric rheumatic diseases
IRCCS Istituto G. Gaslini
Divisione di Pediatria II - Printo
Largo Gaslini, 5
16147 Genova, ITALY
Phone: 0039-010-38-28-54 or 0039-010-39-34-25
For more information about the William S. Rowe Division of Rheumatology at Cincinnati Children's, please contact 513-636-4676.
