• Resources for Parents and Persons with CF

    About Chaplains

    Published Resources

    - Is Adolescents’ Religious Coping with Cystic Fibrosis Associated with the Rate of Decline in Pulmonary Function?-A Preliminary Study

    - Use and Sanctification of Complementary and Alternative Medicine by Parents of Children with Cystic Fibrosis

    - “I Honestly Believe God Keeps me Healthy so I Can Take Care of My Child”: Parental Use of Faith Related to Treatment Adherence

    Chaplains have a college degree, a graduate school degree in theology, and at least one year of specialized training in a health care setting. After that point, they are eligible to apply to be “board certified” by one of 4 organizations in the US which recognizes them as being competent in 27 required areas of functioning.

    “in the background study”

    This study is adults (over age 18 years) who are parents of children from birth through age 13 years who have cystic fibrosis (CF). Learn more about participating in this study.

    When to talk with a Chaplain

    Some people are unsure how to make use of a chaplain, and some who are not active members of an organized faith group may believe that there is nothing a chaplain can help with.

  • 3 ways that may guide your thinking about how to use a chaplain

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    This flowchart was developed to help identify persons in the hospital who may be experiencing some type of religious or spiritual struggle. We have adapted it slightly.  This was originally published by George Fitchett & Jay Risk and published in the Journal of Pastoral Care and Counseling in 2009.

    religious struggle screening protocol

    This set of questions is known as the “Brief R-COPE” and measures the use of religious coping styles. Answering “Quite a bit” or “a great deal” to any of the even-numbered questions may suggest things you might want to discuss with a chaplain. This was originally published by Ken Pargament (Pargament KI, Smith B, W., Koenig HG, Perez L. Patterns of positive and negative religious coping with major life stressors. Journal for the Scientific Study of Religion 1998;37(4):710-724.)

    The following items deal with ways you have coped with you/your child’s disease since he/she was diagnosed. Don’t answer on the basis of what worked or not – just whether or not you did it. Circle the one answer that best applies to you.

    Not at all   

    Somewhat  

    Quite a bit

    A great deal

    1. Looked for a stronger connection with God.

    0123

    2. Wondered whether God had abandoned me.

    0123

    3. Sought God’s love and care.

    0123

    4. Felt punished by God for my lack of devotion.

    0123

    5. Sought help from God in letting go of my anger.

    0123

    6. Wondered what I did for God to punish me.

    0123

    7. Tried to put my plans into action together with God.

    0123

    8. Questioned God’s love for me.

    0123

    9. Tried to see how God might be trying to strengthen me in this situation.

    0123

    10. Wondered whether my church had abandoned me.

    0123

    11. Asked forgiveness for my sins.

    0123

    12. Decided the devil made this happen.

    0123

    13. Focused on religion to stop worrying about my problems.

    0123

    14. Questioned the power of God.

    0123

    - When you’re struggling to make sense out of what is happening

    - When there is a major change in care

    - When you or your child is having surgery

    - When you just want a listening ear

    - When prayer or a blessing would be meaningful

    - When you’re asking “Why?” questions

    - When you’re mad at God

    - When you are grieving a loss of any kind (family, pet, loss of job, way of life)

    - When you face difficult decisions

    - When you have a religious question

    - When you want help talking to children about difficult topics