Center for Innovation in Chronic Disease Care

Clinic for adolescent patients with developmental disabilities to learn skills of self management

The approach to achieving success in this clinic includes: teaching patients techniques of appropriate medical care, providing vocational/educational counseling and assessments, and fostering connections to community services.

Thomas Webb, MD

Learning the practice, use, and application of segmenting customers from a major consumer-goods industry leader, based in Cincinnati, aimed at providing quality products and services to customers around the world.

The Team has learned about the world renowned customer segmentation approaches used by a local consumer products company to quickly bring products to market based on customer attributes and needs to appropriately apply customer segmentation strategies to the Asthma Innovation Lab.

Based on a qualitative research study in which they interviewed teens one-on-one, the team identified six segments of the adolescent asthma population. Currently they are evaluating a newly designed questionnaire based on the identified segments. The aim of the questionnaire will be to segment the population so that effective interventions can then be developed for each segment in an effort to improve the care and outcomes of adolescents with asthma at CCHMC.

Maria Britto, MD

Developing and testing a tailored, multimodal behavioral intervention, delivered using mobile-phone technology and incorporating motivation, knowledge, and problem-solving skills to increase adherence among asthma patients

The approach includes: determining acceptability of an intervention based on existing efficacious problem-solving and motivational interventions, beta-testing a developed mobile-phone based platform for the intervention, testing feasibility of the intervention to determine short-term efficacy and creating broad potential for application among other chronic diseases.

Michael Seid, PhD

Determining adolescents' expectations of the adult-focused medical system after they transition into adulthood.

Adolescents with inflammatory bowel disease (IBD) feel they should begin to see a healthcare provider for adults in their late teens to early 20's. One third of adolescents with IBD feel that it is important for their future healthcare provider to make all health-related decisions for them, and similar proportions expect providers' help with non-health-related concerns such as school, job, and financial problems. Perceptions of illness are the only factors consistently associated with anticipating more help from their provider.
Helping patients improve perceptions about their illness may be one way to decrease risk of poor outcomes as adolescents with chronic illness transition into adulthood.

Michael Yi, MD

Collaborative to provide care following medical care home model using guidelines from Wagner's Chronic Care Model

Integration of self-management training program (based on Stanford's Chronic Disease Self Management Program), implementation of adolescent training program, and active use of internet-based care management tool (portal).

Thomas Webb, MD

A day devoted to education and learning about self management, research studies, and clinical topics related to sickle cell disease. The purpose is to create awareness in a fun and interactive way for patients and families.

This day enables increasing knowledge of patients and families of interventions, studies, and resources to living with sickle cell disease and creating a community of patients with sickle cell disease and families to interact and exchange information.

Lori Crosby, PsyD

Monica Mitchell, PhD

Pediatric and adult, multi-disciplinary clinic to care for patients with spina bifida

Enhancing care for patients with spina bifida across disciplines through communication between disciplines through pre and post clinic meetings to discuss plan of care, standardized forms, national clinical disease registry, improved scope of services, and improved communication with family regarding plan of care (survey to determine what information they want, preferred channel/medium).

Thomas Webb, MD

Gather qualitative data by conducting 25 semi-structured interviews to validate 2 adult spirituality measures and understand range and depth or spiritual coping strategies used. Will gather longitudinal quantitative data of 125 teens with asthma over 12-18 months to determine relationships among spirituality/religion, mental health, and quality of life. Will also examine the feasibility of a pilot spiritual intervention with 25 teens with a chronic illness.

Examining associations among spirituality/religion, mental health, and quality of life; assess relevant mediators and moderators; understand role of spiritual coping in teens with chronic illness.

Sian Cotton, PhD

To investigate an econometric approach (health utilities) to assess quality of life in adolescents with inflammatory bowel disease (IBD) and their healthy peers.

Directly derived health utilities from adolescents with or without IBD may be used for outcomes measures in decision analyses and cost-effectiveness analyses to evaluate health policies, programs, interventions, and may be used in patient-specific decision tools.

Michael Yi, MD

Developing and testing a computerized intervention to determine why patients with sickle cell disease are non-adherent with clinic visits and medications. This program has been piloted to assess the perceptions of patients with the ease of use, usefulness, and format of the program in a clinical setting. In addition, the pilot also assessed recommendations for making the program more clinically relevant and user-friendly

This web-based technology aims to improve adherence in patients with sickle cell disease, standardize and implement cost-effective assessments and services, and identify problem-solving interventions.

Lori Crosby, PsyD