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Adults with complex congenital heart disease require lifelong expert surveillance to avoid complications such as arrhythmia, heart failure, infection, stroke or premature death. Of the approximately 600,000 American adults with complex congenital heart disease, however, fewer than 50,000 receive follow-up care from a cardiologist who is specially trained to care for them and their unique issues.
The Heart Institute’s Adolescent and Adult Congenital Heart Disease Program provides a new model to ensure adolescents and adults with congenital heart defects receive appropriate care, including:
Gary Webb, MD, director of the Adult Congenital Heart Program, talks about how there are now more adults with congenital heart disease than children.
Does your teen schedule her own doctor’s appointments? Does he know how to fill a prescription? Do you know what doctor(s) your child will see when she becomes an adult?
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