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The Heart Institute Genetic Counseling Clinic (HIGCC) is for families and patients, including adults and children, with potential heritable cardiovascular disorders. Our team includes a board-certified genetic counselor working in close collaboration with a pediatric cardiologist and clinical geneticist.
Services at the Heart Institute Genetic Counseling Clinic include:
The goal of the HIGCC is to provide an evaluation of cardiovascular risk and to help individuals and their physicians understand and utilize genetic information to make personalized and appropriate screening and medical management decisions. It is important to integrate genetic information as part of a personalized healthcare plan. The HIGCC can make recommendations regarding healthcare management and provide referrals to appropriate specialists, if necessary.
Our team is comprised of a genetic counselor, medical geneticist and pediatric cardiologist with experience in cardiovascular-risk assessment.
Each new patient in the CV Genetics Clinic at Cincinnati Children's Hospital Medical Center is evaluated by a clinical geneticist, genetic counselor and cardiologist at the time of their clinic appointment. A comprehensive family history and past medical history are obtained. Each patient will also have an echocardiogram either before, or the day of, the clinic visit. The evaluation by Cardiology will include review of the echocardiogram, history, as well as a clinical examination. The genetics evaluation includes a comprehensive medical history as well as targeted physical examination.Due to the involvement of echosonography, as well as evaluations by both genetics and cardiology, please allow up to 4 hours for a clinic visit.Individuals may choose to wear gym shorts and / or a sports bra during the physical exam. If a recent (within one year) echocardiogram has been performed, the patient may bring a copy of the echo recording for cardiology review. A baseline echocardiogram is required for all patients referred for CV Genetics syndrome because of the risk of cardiac involvement. Location / DirectionsThe CV Genetics Clinic is held in Cardiology on the fourth floor of Location C. Clinics are the 2nd and 4th Friday of each month. Request an appointment at the CV Genetics ClinicThe CV Genetics Clinic team at Cincinnati Children's Hospital Medical Center prefers that each patient provide a written referral from a physician who is willing to speak with a member of the clinical staff, if desired.Written referrals allow the physicians and genetic counselor to serve as a resource for other healthcare professionals caring for and managing many of the day-to-day symptoms of the patients. Referrals from primary care or managing physicians are also helpful for billing and insurance purposes.Referrals can be faxed to the attention of the CV Genetics Clinic, 513-803-1748. Please include: * Referring physician's name * Complete address * Phone number * Patient information * Reason for referralBefore the first appointment, it will be helpful to collect information about family members who have had cardiovascular disease. Important information includes:
Medical reports can sometimes be helpful, including echocardiogram and ECG reports, hospital medical records, autopsy reports and death certificates. This can assure that accurate information is used in assessing your family’s risk. Although these documents may be helpful, they are not always necessary for risk assessment.
A family history of cardiovascular disease can increase your own risk for developing cardiovascular disease. Learning more about your relatives who have had cardiovascular disease is an important step in determining your own risk. Health problems can be difficult to discuss, even with family members. It may be helpful to your relatives to know why you are asking about their health. Explain that the entire family could benefit from having the information.
Because family health history is such a powerful screening tool, the surgeon general has created a new computerized tool to help make it fun and easy for anyone to create a sophisticated portrait of their family’s health.
The web-based tool helps users organize family history information and then print it to give to their healthcare providers. In addition, the tool allows users to save their family history to their own computer and even share it with family members. Access the My Family Health Portrait web tool.
It may be helpful to think about how you would feel talking about your personal or family history of cardiovascular disease. Some individuals find it helpful to bring someone to help provide family history information, to ask questions and to provide support during the visit.
For more information about the Cardiovascular Genetics Clinic, please call 513-636-4432. To speak with our genetic counselor or to schedule an appointment, please call 513-803-3317 or email firstname.lastname@example.org.
For more information about services through the Heart Institute Genetic Counseling Clinic, contact us:
For more information about services through the Heart Institute Genetic Counseling Clinic, contact us: Phone: 513-636-4729 Fax: 513-636-9298 Email: email@example.com
3333 Burnet Avenue, Cincinnati, Ohio 45229-3026 | 1-513-636-4200 | 1-800-344-2462 | TTY:1-513-636-4900
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