Clinical Trials

A Research Study for Girls and Young Women With Turner Syndrome

Why are we doing this research?

Cincinnati Children’s is conducting a research study, sometimes known as a clinical trial or clinical study, to learn more about whether girls and young women with Turner syndrome are more at risk to develop diabetes than girls and young women without Turner syndrome.

Who can participate?

Girls and young women 6 to 22 years old who have been diagnosed with Turner syndrome may be eligible to participate.

What will happen in the study?

This study involves 1 visit to Cincinnati Children’s that will last 2 to 3 hours.

Participants will:

  • Have her height, weight and blood pressure measurements taken
  • Answer questions about her health care
  • Have a physical exam
  • Have an IV for blood draws
  • Have an oral glucose tolerance test

Parents interested in having their child participate will be given a consent form that thoroughly explains all of the details of the study. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.  

What are the good things that can happen from this research?

Being in this research study may not help your child directly.  However, your child will receive a physical exam and lab work at no charge.  The labs include cholesterol levels, liver function tests, insulin levels, and blood sugars. In addition, the results of the research study may help us to determine a better screening tool for diabetes in patients with Turner syndrome.

What are the bad things that can happen from this research?

Possible risks and discomforts will be discussed with parents or guardians interested in learning more about the study.

Will you/your child be paid to be in this research study?

Participants may receive up to $100 for their time and effort.

Who should I contact for more information?

Nicole Sheanon

513-636-4549

nicole.sheanon@cchmc.org

Endocrinology      

Cincinnati Children’s Hospital Medical Center, MLC 7012

3333 Burnet Ave.

Cincinnati, OH  45229-3039

Study Doctor:

Philippe Backeljauw, MD

Endocrinology

Cincinnati Children’s Hospital Medical Center

Nicole Sheanon, MD

Endocrinology

Cincinnati Children’s Hospital Medical Center

Where can I find additional information?