Clinical Trials

Are You or a Loved One Diagnosed with a Neurobehavioral and/or Movement Disorder?

What is the purpose of this study?

The purpose of this research study is to create an electronic database that may help researchers identify patients for future studies on neurobehavioral disorders and movement disorders.

Researchers are attempting, in current and future research studies, to increase our understanding of these disorders and develop better treatment options.

Who can participate?

Infants, children, teens and adults who are diagnosed with a neurobehavioral disorder or movement disorder may be eligible to participate.

These types of disorders affect the way the brain processes information and controls the body. Examples include Tourette Syndrome (TS), Sydenham’s Chorea, Dystonia, Attention Deficit Hyperactivity Disorder (ADHD) and Obsessive Compulsive Disorder (OCD).

What is involved?

If you choose to participate, you or your child will be asked to fill out a short form including your name, guardian’s name (if applicable), contact information, age, gender, demographic information and diagnosis. You will also be asked whether you or your child would like to be considered for participation in future studies that may require a blood draw.

A detailed list of procedures will be provided to anyone interested in knowing more about this study.  

What are the benefits?

You or your child will not receive a direct medical benefit from being in this study. The information in this database may be used to recruit participants for studies that may benefit other patients with neurobehavioral disorders or movement disorders in the future. 

Will I get all the facts about the study?

You, as the participant or as the parent or guardian, will be given a consent form that thoroughly explains all of the details of the study.  The form covers all of the procedures, the risks, the benefits, the pay, who to contact with questions or concerns and more.  A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.  

What are the risks and discomforts of the study?

There are no known risks associated with the study but all possible discomforts or risks will be discussed with you if you are interested in learning more about the study.

Do participants receive pay, compensation or reimbursement?

Participants will not be paid for their participation in this study.

Who should I contact for more information?

Sarah Jacobson

513-803-9036

sarah.jacobson@cchmc.org

Cincinnati Children’s Hospital Medical Center

Division of Neurology

3333 Burnet Avenue

Cincinnati, OH  45229-3039

Principal Investigator

Donald Gilbert, MD

Director, Tourette Syndrome and Movement Disorders Clinics

Cincinnati Children’s Hospital Medical Center

Division of Neurology