Clinical Trials Office

Have You Been Diagnosed with a Tic Disorder or Tourette Syndrome?

What is the purpose of this study?

This is a research study to understand the relationship between genes and symptoms associated with Tourette Syndrome (TS), Tic Disorders and/or Obsessive Compulsive Disorder (OCD). Researchers also want to find out why some members of a family are affected with these disorders and other are not.

Who can participate?

Infants, children, teens and adults who are diagnosed with TS, chronic vocal or motor tics, and/or OCD may be eligible to participate.

What is involved?

If you choose to participate, you or your child will be in the research study for 1 or sometimes 2 study visits. At the study visit, consent will be obtained and you or your child will:

  • Complete a survey questionnaire about symptoms associated with TS, Attention Deficit Hyperactivity Disorder (ADHD), OCD and other neurological and psychiatric conditions
  • Answer questions about your family tree
  • Have a blood sample collected

A detailed list of procedures will be provided to anyone interested in knowing more about this study.  

What are the benefits?

You or your child will not receive a direct medical benefit from being in this study but you may learn more about symptoms of TS, OCD or ADHD.  The information gained from this study may also help people in the future by creating new medical knowledge about TS associated conditions. 

Will I get all the facts about the study?

You, as the participant or as the parent or guardian, will be given a consent form that thoroughly explains all of the details of the study.  The form covers all of the procedures, the risks, the benefits, the pay, who to contact with questions or concerns and more.  A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.  

Do participants receive pay, compensation or reimbursement?

Participants will receive $20 for their one-time visit.

Who should I contact for more information?

Sarah Jacobson

513-803-9036

sarah.jacobson@cchmc.org

Cincinnati Children’s Hospital Medical Center

Division of Neurology

3333 Burnet Avenue

Cincinnati, OH  45229-3039

Principal Investigator

Donald Gilbert, MD

Director, Tourette Syndrome and Movement Disorders Clinics

Cincinnati Children’s Hospital Medical Center

Division of Neurology