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Two key measures of outcomes and quality of life for patients with cystic fibrosis (CF) are lung function (also known as FEV1) and body mass index (BMI). The charts below compare our rates to national averages and the 10 best performing US centers with statistics from the Cystic Fibrosis Foundation National Patient Registry.
At the Cincinnati Children’s Cystic Fibrosis Center, we work closely with our patients and families and view them as integral members of the care team. This partnership helps to inform patients’ individual treatment plans as well as our improvement priorities.
Highlighted below are recent quality improvement initiatives and areas of outcomes research:
Cincinnati Children’s CF Center is a recipient of the 2011 Cystic Fibrosis Foundation’s Quality Care Award: Recognizing Outstanding QI Processes and Accomplishments. Of the 32 centers visited during the fall 2010 and spring 2011 site visit cycles, Cincinnati Children’s is among 11 centers selected to receive the award.
The criteria set forth for being considered for the award is sustained quality improvement work that improved outcomes.
The quality improvement performance standards used to identify centers that meet these criteria include:
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