Cincinnati Center for Eosinophilic Disorders

  • Support for Patients & Families

    Having a child with special healthcare needs means becoming his or her voice. Below are organizations that provide information to help families facing eosinophilic disorders.

  • Patient Advocacy

    Show All

    + CCED Facebook Page

    Facebook is an online forum that helps users connect and share with the people in their life. For the Cincinnati Center for Eosinophilic Disorders (CCED), our Facebook page is an exciting opportunity to reach out to patients, families and professionals whose lives are impacted by eosinophilic disorders.

    + Rothenberg Research Lab Facebook Page

     Facebook is an online forum that helps users connect and share with the people in their life. For the Rothenberg Research Lab, our Facebook page is an exciting opportunity to reach out to patients, families and professionals whose lives are impacted by allergic and eosinophilic disorders and to share what goes on in the lab.

    + Campaign Urging Research for Eosinophilic Diseases (CURED)

    Campaign Urging Research for Eosinophilic Diseases (CURED) is a nonprofit organization dedicated to raising funds to aid in research and public awareness of eosinophilic disorders. Learn more about CURED or how to get involved with its upcoming fundraising opportunities.

    + The American Partnership for Eosinophilic Disorders (APFED)

    The American Partnership for Eosinophilic Disorders (APFED) is a nonprofit advocacy organization for those living with eosinophilic disorders. It serves as a resource for patients, their families, physicians and the medical community by increasing awareness of eosinophilic disorders and providing funding for research.

    + The Cincinnati Eosinophilic Family Coalition (CEFC)

    The Cincinnati Eosinophilic Family Coalition (CEFC) is a network of families that are living with a family member that has an eosinophilic disorder. They have come together in an effort to support each other through this unexpected path on which life has taken them.

    + EGID/EE Support Group in Israel

    The EGID/EE Support Group in Israel, called "LEHEDVA", is a non-profit organization whose main objective is to supply basic and updated information about eosinophilic esophagitis and eosinophilic gastrointestinal disorders  and to raise awareness of these disorders among doctors. 

  • Outside Resources

    Show All

    + Angels for Eosinophilic Research Alliance

    The Angels for Eosinophilic Research Alliance is a 501(c)(3) charitable organization dedicated to raising money for research for a cure for eosinophilic disorders.

    + Children's Magic: Children's Milk Allergy and Gastrointestinal Coalition

    The Children's Milk Allergy and Gastrointestinal Coalition (MAGIC) is committed to promoting health care coverage and reimbursement of amino acid-based elemental formulas for children who are unable to consume a natural, life-sustaining diet due to various allergies or diseases, such as eosinophilic disorders. Children’s MAGIC is composed of parents, organizations, institutions, and like-minded individuals.

    + Food Allergy Research & Education (FARE)

    Formerly the Food Allergy Initiative and Food Allergy & Anaphylaxis Network, the Food Allergy Research & Education is a nonprofit organization dedicated to bringing about a clearer understanding of the issues surrounding food allergies. 

    + The Food Protein-Induced Enterocolitis Syndrome (FPIES) Foundation

    The Food Protein-Induced Enterocolitis Syndrome (FPIES) Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.

    + The International Gastrointestinal Eosinophil Researchers (TIGER)

    The International Gastrointestinal Eosinophil Researchers (TIGER) is a comprehensive source of information and educational tools for people with eosinophilic esophagitis, their families and the medical professionals who treat them.

    + Kids with Food Allergies Foundation

    The Kids with Food Allergies Foundation is now a division of the Asthma & Allergy Foundation of America (AAFA). These organizations are dedicated to educating and supporting families raising children with food allergies. 

    + The National Organization for Rare Disorders (NORD)

    The National Organization for Rare Disorders (NORD) is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.

    + The Registry for Eosinophilic GastroIntestinal Disorders (REGID)

    The Registry for Eosinophilic GastroIntestinal Disorders (REGID) is a collaboration of medical centers, professionals, families and individuals whose mission is to improve the knowledge, research and outcomes for people living with eosinophilic gastrointestinal disorders. REGID is not only a national registry of people affected by eosinophilic gastrointestinal disorders but also a forum to enhance the connection of people to resources and research.

 
  • Zeke's Story

    Eosinophilic esophagitis story featuring Zeke Angel.
    Zeke Angel appeared on the MTV reality show "True Life" to explain what it's like to live with eosinophilic esophagitis, an allergic inflammatory condition. He sees specialists at Cincinnati Children's and wants to be a role model for others. Watch his story.