• Related Resources

    The Comprehensive Neuromuscular Center at Cincinnati Children’s Hospital Medical Center provides a list of web resources that may be helpful to those with pediatric neuromuscular diseases.

    • Andrew’s Buddies / Fight SMA: Fight SMA, known  as “Andrew’s Buddies Corporation,” was created to  accelerate the search for a treatment and cure for Spinal Muscular Atrophy (SMA), the  No. 1 inherited cause of infant death.
    • Cure CMD: Cure CMD provides Congenital Muscular Dystrophy resources, information and support to families, doctors and researchers.
    • Charcot Marie Tooth (CMT) Association: The CMTA is a nonprofit organization whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT.
    • Families of Spinal Muscular Atrophy (FSMA): Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure for SMA.
    • Friedreich’s Ataxia Research Alliance (FARA): The Friedreich’s Ataxia Research Alliance (FARA) is a nonprofit organization dedicated to curing Friedreich’s Ataxia (FA).
    • Muscular Dystrophy Association: MDA is a nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.  The association also provides comprehensive healthcare and support services, advocacy and education.
    • National Ataxia Foundation: The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.
    • The Neuropathy Association: The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community.  They provide support and education, advocate for patients’ interests and promote research into the causes of and cures for neuropathy.
    • Parent Project Muscular Dystrophy: Parent Project Muscular Dystrophy (PPMD) is a nonprofit organization founded by parents of children with Duchenne and Becker Muscular Dystrophy.
    • The United Mitochondrial Disease Foundation (UMDF): UMDF promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders and  provides support to affected individuals and families.