Dialysis
Patient Resources

Dialysis Resources for Patients and Families

The staff of the Dialysis Unit believes that supplying educational resources is a vital component to providing the highest level of care to patients.  We have compiled an extensive set of educational resources. This information is meant to help patients and their families explore the conditions that affect the kidney. Knowledge gained could be helpful when preparing for a visit or can aid in understanding the process and terminology used by the dialysis staff.  Educational topics include:

  • Health risks of chronic kidney disease
  • Dietary management
  • Home PD instruction
  • Dialysis access care
  • Transition to adult care

Glossary

For an initial review of topics, you may look up a term in the glossary of kidney and urologic terminology.

Suggested Readings

MEDLINEplus 
Consumer-friendly information on specific disease topics and conditions, as well as links to medical encyclopedias and dictionaries, drug information and other resources.

MEDLINE
A service of the National Library of Medicine that provides access to over 12 million MEDLINE citations since the mid-1960s and additional life science journals.

PubMed: Full-text Medical Journals
A selected list of free full-text online medical journals, especially current issues of journals in PubMed's MEDLINE

 

Kidney Foundation of Greater Cincinnati
A leading, local resource for kidney health education and patient services. Provides patient services, information and research funding in the Tristate to prevent and alleviate the life-threatening effects of renal disease.

NephCure
Nephcure.org is for patients, their families, health providers and researchers affected by Nephrotic Syndrome and Focal Segmental Glomerulosclerosis, or FSGS, to connect with others and to keep up with scientific advances and breakthroughs that will eventually lead to better treatment and a cure for these kidney diseases.

North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS)
North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS) is a research effort to register and follow children who receive renal allografts in North America, as well as study the clinical course and natural history of patients with renal dysfunction and to continue following these patients as they move among the end-stage renal disease (ESRD) therapeutic modalities.

International Society for Peritoneal Dialysis (ISPD)
The purpose of the International Society for Peritoneal Dialysis is to advance knowledge of peritoneal dialysis and to promote advancement of such knowledge through internal scientific meetings and scientific publications.

National Kidney Foundation (NKF)
The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

The following organizations represent health professionals involved in the study and treatment of kidney and urologic diseases.

Financial Help for Treatment of Kidney Failure
The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) provides information about financial help for the treatment of kidney failure. It is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the US Department of Health and Human Services.

Centers for Medicare & Medicaid Services (CMS)
Federal agency responsible for administering Medicare, Medicaid, SCHIP (State Children's Health Insurance), HIPAA (Health Insurance Portability and Accountability Act) and CLIA (Clinical Laboratory Improvement Amendments), as well as several other health-related programs.

About the Dialysis Unit

The Dialysis Unit at Cincinnati Children's provides a variety of services for patients and families. Read More