Dystonia and Surgical Movement Disorders Clinic

  • What to Expect

    Initial Visit 

    Your initial visit allows us to gain as full an understanding as possible of the types of abnormal movements. Results of previous treatments, if any, are also very important. For this reason, we appreciate your filling out the intake questionnaire. It is most efficient if you can fill this out before the visit.  You may feel free to email it back to us at this HIPAA secure email.

    Records are also of help, specifically those that specifically address the movement disorder or other neurological or psychiatric symptoms.  If you would like us to review medical, psychological, neuropsychological or educational assessments, bring them to the visit. Brain imaging studies (CT Scans, MRI scans) and EEGs are very helpful in the assessment of dystonia and should be brought to clinic. 

    Sometimes other movements are best seen on home videos. You may feel free to bring these videos to clinic for our review as this can be extremely helpful. Contact us if you want to send them digitally.

    All new patients are evaluated by a Movement Disorder specialist Neurologist in clinic, Donald Gilbert or Steve Wu, as well as a Neurosurgeon with specific expertise in the surgical treatment of dystonia and other movement disorders, Dr. Ellen Air.  Because this is a teaching hospital, a movement disorder fellow, who has completed at least five years training in Pediatrics and Neurology, or a Cincinnati Children’s or University of Cincinnati resident physician in training, may also participate in the evaluation. You may meet medical students. You will also meet nurses or our nurse practitioner at your first visit.

    The physician’s assessment begins with a review of the information on the questionnaire, any other information you have brought and a detailed neurological examination. We will discuss with you diagnostic testing we recommend, if any, then review with you our recommendations for a treatment plan. This may include education about the diagnosis, discussion of how to be proactive with peers, family and the school, medical treatment, genetic testing, or referral other specialists if necessary.

    Follow-Up Visit 

    Follow-up care by the Surgical Movement Disorders Clinic varies depending on the needs of children and adults we evaluate. Milder cases may need education and medication at the first visit, and follow-up as needed for symptom management.  Other individuals with more impairing symptoms may be recommended for procedural or surgical treatment, in which case such treatments and follow-up appointments will be scheduled based on these recommendations and the chosen plan of care.  Follow-up may also be needed to discuss results of recommended tests or referrals. All diagnostic and therapeutic decisions in our practice are reviewed as a team with Drs. Air, Gilbert, and Wu.