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21 children with hearing loss due to congenital symptomatic cytomegalovirus
were described. Children with neurological problems such as seizures, cerebral
palsy, and intellectual disability were more likely to need special education
services than those without significant neurological problems. Children with
intellectual disabilities had more difficulties in communication skills.
Madden, C, Wiley, S, Schleiss, M, Benton, C,
Meinzen-Derr, J, Greinwald, J, and Choo, D. Audiometric, Clinical and Educational Outcomes in a Pediatric Symptomatic
Congenital Cytomegalovirus (CMV) Population with Sensorineural Hearing Loss. International
Journal of Pediatric Otorhinolaryngology. Volume 69 1191-1198. 2005.
This study reviewed the charts of children who received a cochlear implant
and had a common genetic cause of hearing loss, GJB2 mutation or connexin
mutation. Although other studies at the time indicated children with this cause
of hearing loss traditionally do well with a cochlear implant, our study found
44% of these children to have a developmental problem which could impact their
progress with the implant, such as specific learning disabilities, attention
deficit disorder, motor delays, and global developmental delays.
Wiley, S, Choo, D, Meinzen-Derr, J, Hilbert, L, Greinwald. GJB2 mutations and additional disabilities in a pediatric cochlear implant
population. J. International Journal of Pediatric Otorhinolaryngology. Volume 70 493-500.
A tool to measure caregiver stress for children specifically with hearing
loss was developed and described in this paper. Families experienced different
stressors as children were at different ages. Families experienced a lot of
stress around appointments and insurance at the time of diagnosis and more
difficulties with school programming once children were older. They were always
noting concerns around communication skills for their children and interested
in making sure their children could communicate with others across settings
(medical, school, and community).
Meinzen-Derr, J, Lim, L, Choo, D, Wiley, S. Pediatric Hearing Impairment Caregiver Experience: Impact of Duration of
Hearing Loss on Parental Stress. International
Journal of Pediatric Otorhinolaryngology. 72:1693-1703. 2008.
This work was started because although children with severe to profound
hearing loss are receiving cochlear implants at high rates, the children with
implants are different than all of the children who are eligible for cochlear
implants. In the available data, there are some ethnic groups are
under-represented as well as children with additional disabilities. This study
tried to understand the characteristics of children who never were referred for
a cochlear implant evaluation despite having the right type of hearing loss to
suggest a child might benefit. We found that children from single parent homes
were the least likely to be referred for this evaluation in our institution.
Wiley, S, Meinzen-Derr. Access to cochlear implant candidacy evaluations: who is not making it to
the team evaluations? J. International Journal of Audiology. Feb 48(2): 74-79. 2009.
This paper described 200 children with permanent hearing loss who received
multi-disciplinary evaluations. A high rate of vision problems (53%) and
additional disabilities (58%) were found. It did not matter if children had
mild degrees of hearing loss, unilateral loss, or more severe degrees of
hearing loss. These rates were high across the groups.
Wiley, S, Arjmand, E, Meinzen-Derr, J, Dixon, M. Findings from multidisciplinary evaluation of children with permanent
hearing loss. International Journal of
Pediatric Otorhinolaryngology. (75) 1040-1044. 2011.
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