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Children who are Deaf-Blind with Cochlear Implants: Determining
the Benefits and Challenges of Cochlear Implants for Children with Combined
Hearing and Vision Loss
http://www.kidsdbci.org/
This
website describes the study on cochlear implants in children who are
deaf-blind. It includes resources to help understand a child’s communication
needs in order to guide therapeutic intervention.
http://ohiodeafblind.org/
This is Ohio’s project to support families, schools, and
therapists in effective interventions for children with dual sensory
impairment. They provide technical assistance, learning sessions and have a
lending library.
http://www.chargesyndrome.org/
This organization is a partnership with families and
professionals. This website includes excellent resources for families, medical
professionals, and educators regarding the needs and gifts of children with
CHARGE syndrome.
http://www.ocali.org/
OCALI strives to build state-and system-wide capacity to improve
outcomes of children with complex needs through leadership, training and
professional development, technical assistance, collaboration, and technology. They
view the importance of partnership with families as vital to the success of
children they serve.
They have a number of webinars and provide training across the
state.