Support for Families
At the Fanconi Anemia Comprehensive Care Center at Cincinnati Children’s, we encourage families to take advantage of the following resources.
Family Support Network
The Family Support Network at Cincinnati Children’s includes specialists from Child Life, Financial Services, Pastoral Care, the School Intervention Program and Social Work.They can provide:
- Emotional, psychosocial and spiritual support
- Assistance with schooling concerns
- Community outreach and education
- Information about additional resources (financial, insurance, community)
Guest Services
Guest Services makes a stay in Cincinnati more comfortable and convenient by providing assistance with lodging, ground transportation and other needs.
Clinical Concierge
Our Clinical Concierge team schedules multiple medical appointments for families traveling to Cincinnati Children’s from outside the region.
Kids Camp
The Cancer and Blood Diseases Institute hosts a week-long summer camp every year. “Hem / Onc Kids Camp” takes place at Joy Outdoor Education Center in Clarksville, OH.
The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities. The camp is an opportunity for kids ages 7-16 to develop new skills, form lasting friendships and build their self-esteem, all while having a great time. Patients are encouraged to bring a sibling.
Additional Resources
Other organizations provide extensive support and education for patients and families dealing with Fanconi anemia, including:
