Family Education Day Archive
2017 - 6th Annual Heart Institute Family Education Day
Session 1
- Talk 1: New Resources for Parents and Caregivers
- Talk 2: Primary Care Physicians' Role in Congenital Heart Disease
Session 2
- Breakout A: AED/CPR Training
- Breakout B: Nutrition
- Breakout C: Tour of T4 Research Area
Session 3
- Talk 1: Parental Stress
- Talk 2: Cardiac Surgical Update
Session 4
- The Heart Within Viewing and Q&A
- Adult Survivors Panel Session
2016 - 5th Annual Heart Institute Family Education Day
Into the Wild: Charting Unfamiliar Territory Together
Guest Speaker: James Vogel
- Team Leader of Manatee Springs, Cincinnati Zoo & Botanical Garden
- Father of 16-year-old son with pulmonary atresia, tricuspid stenosis and arrhythmia
Together we explored unfamiliar territory of congenital heart disease within four phases of transition.
Session 1 | NEWBORN
- Fetal and Newborn Screening
Session 2 | HOME LIFE
- Impact of CHD on Family
- Vulnerable Child Syndrome
Session 3 | ADOLESCENCE
- Scars and Body Image
- CHD and Physical Activity
- CHD and School
- New Technologies for Adult CHD Patients
- Panel of Adult CHD Survivors and their Parents
2015 - 4th Annual Heart Institute Family Education Day
Guest Speaker Amy Basken (view recording)
Director of Programs, Pediatric Congenital Heart Association (PCHA)
Amy is a founding member of the PCHA. As the mother of a child with a heart defect, Amy has had the privilege of spending the last nine years leading congenital heart disease advocacy efforts for many of the largest national congenital heart disease organizations, coalitions and consortiums. Her accomplishments include the introduction, passage and funding of the Congenital Heart Futures Act, the development and growth of the Congressional Congenital Heart Caucus, as well as coordinating national messaging for the Critical Congenital Heart Disease Screening movement.
Plenary Session 1 | ACCEPTANCE
Physician Panel Moderator: Nicolas Madsen, MD, Medical Director, Inpatient Cardiology, Heart Institute
Julia Anixt, MD, Pediatrician, Division of Developmental and Behavioral Pediatrics
Thomas Kimball, MD, Professor of Pediatrics; Medical Director, Heart Institute
Christopher Learn, MD, Cardiologist, Adolescent and Adult Congenital Heart Disease Program, Heart Institute
Plenary Session 2 | ACTION (view recording)
Surgical Advances: James Tweddell, MD, Professor of Pediatric Surgery; Executive Co-Director, Heart Institute
Medical Advances: Andrew Redington, MD, Director, Division of Cardiology; Executive Co-Director, Heart Institute
2014 - 3rd Annual Heart Institute Family Education Day
Jennifer Page: Use Your FORCE (video)
- Jennifer's son, Max, gained worldwide fame in 2011 when he appeared in a Super Bowl commercial for Volkswagen. Max became known as “Mini Darth Vader.” He was born with a congenital heart defect that required eight major surgeries by the time he turned eight years old. Jennifer shares her family’s journey.
Plenary Session I: Caring for the Family Challenges of a New Generation of Survivors (video)
- Family Relationship: Glenn Stanton, MSW, President of Family Affairs - Stanton Household & Hollee Stanton, MBW, SM, Vice President of Family Affairs - Stanton Household
- Personal Finance: Leslie Sams, congenital heart disease parent & Teresa L. Bowling, family financial advocate
- Family Education Research: Joshua Daily, MD, clinical fellow, Heart Institute
Plenary Session II: Caring for the Cardiac Challenges of a New Generation of Survivors (video)
- Cardiac Transplantation: Chesney Castleberry, MD, cardiologist, heart failure and transplant, Heart Institute
- Fertility & Pregnancy: Christopher Learn, MD, cardiologist, Adolescent and Adult Congenital Heart Disease Program, Heart Institute
- Adult CHD Revision Surgery: Roosevelt Bryant, III, MD, surgeon, cardiothoracic surgery, Heart Institute
- Attention Deficit / Hyperactivity Disorder (ADHD) In Children with CHD: Julia Anixt, MD, pediatrician, Division of Developmental and Behavioral Pediatrics
- Stress and Anxiety Management: Rich Gilman, PhD, Division of Child and Adolescent Psychiatry / professor, Department of General Pediatrics, University of Cincinnati
2013 - 2nd Annual Heart Institute Family Education Day
Plenary Session I: Frontiers of Scientific Research
- Burns Blaxall, PhD - Director, Translational Science, The Heart Institute
- Jeffrey Robbins, PhD - Executive Co-Director, The Heart Institute and Director, Division of Molecular Cardiovascular Biology
- Paula Goldenberg, MD - Clinical Geneticist, The Heart Institute
Plenary Session 2: New Medical Devices and Clinical Frontiers
- David Morales, MD - Executive Co-Director, The Heart Institute and Director, Division of Pediatric Cardiothoracic Surgery
- Bryan Goldstein, MD - Cardiologist, Cardiac Catheterization and Intervention, The Heart Institute
- Jim Cnota, MD - Director, Neonatal Cardiology and Fetal Echocardiography, The Heart Institute
Plenary Session 3: Modern Practices in Long-Term CHD Outcomes
- Haleh Heydarian, MD - Clinical Director, Heart Institute-Kindervelt Neurodevelopmental and Educational Clinic
- Nicolas Madsen, MD - Medical Director, Inpatient Cardiology, The Heart Institute
- Christopher Learn, MD - Cardiologist, Adolescent and Adult Congenital Heart Disease, The Heart Institute
Plenary Session 4: A New Era of Communication: Patients, Families, and the Medical Team
- Jodi Lemacks - National Program Director, Mended Little Hearts
- Irina Parkins, PhD - Psychologist, Behavioral Medicine and Clinical Psychology
2012 - 1st Annual Heart Institute Family Education Day
Plenary Session 1: Living with Heart Disease
- Michelle Ernst, MD – Director, Behavioral Medicine Consultation-Liaison Service, Behavioral Medicine and Clinical Psychology
- Thomas Kimball, MD – Medical Director, The Heart Institute
- Camille Graham, MD – Executive Physician Community Leader
- Lisa Butler – Chair, Mended Little Hearts of Cincinnati
Plenary Session 2: Developmental and School Experiences: What to Expect
- Bradley S. Marino, MD – Director, Heart Institute Neurodevelopmental Clinic, The Heart Institute
- Mary Kay Irwin, EdD (ABD) – Manager, School Intervention Program, The Heart Institute
Plenary Session 3: Transitioning
- Heather Rieselman, BSN, RN – Cardiac Intensive Care Nurse, The Heart Institute
- Frank Biro, MD – Division Director, Adolescent Medicine
- Christopher Learn, MD – Adult Congenital Heart Disease Cardiologist, The Heart Institute
