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At the Hemophilia Center at Cincinnati Children’s, we encourage families to take advantage of the following resources:
Bloodline is a newsletter published by the Hemophilia Center to provide families with information about the ever-changing field of hemophilia and other bleeding disorders.
Do the 5: A Guide for Living with Hemophilia
This comprehensive guide includes fact sheets covering all the essentials that you need to know about living with hemophilia. The National Hemophilia Foundation’s five strategies for living a longer and healthier life:
Parent Empowerment Newsletter
This newsletter is designed for families affected by bleeding disorders and is produced by a parent of a child with hemophilia.
Passport for Life: A Support Program for Everyday Living with Hemophilia
This comprehensive support program from Baxter International Inc. and HealthMedia encourages appropriate treatment adherence and patient support.
The Family Support Network at Cincinnati Children’s includes specialists from Child Life, Financial Services, Pastoral Care and Social Work. These network resources can provide:
Other organizations provide extensive support and education for patients and families dealing with hemophilia, including:
Greater Cincinnati Support and Advocacy
International Education, Advocacy and Support
Patients and families will find a wealth of information in the 46-page Hemophilia Handbook (PDF), including chapters on "Understanding Hemophilia," "The Treatment of Hemophilia," "Hemophilia in the First Year of Life," and "Visiting the Clinic."
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