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The Immune Deficiency and Histiocytosis Program within the Division of Bone Marrow Transplantation and Immune Deficiency offers a unique combination of expert medical care, state-of-the-art testing capabilities and extensive research for children with immune deficiencies. Our team takes a comprehensive approach, working together to ensure that patients receive the most effective treatment and follow-up care.
As part of our program, we provide initial diagnoses, second opinions, immunologic testing and genetic profiles as well as expert medical care.
Immune deficiencies affect every patient differently and may involve many parts of the body. For instance, some children may have gastrointestinal problems, and others may have abnormalities in their lungs or liver. By reviewing the information unique to each patient, our team is able to schedule appointments with other relevant subspecialists in conjunction with the first evaluation in the Immune Deficiency Clinic.
A major strength of our program is that we offer a full range of immunologic testing not normally available within an individual center. Tests are analyzed quickly, and additional studies may be performed, as needed, during the initial evaluation visit.
Since our specialists in immune deficiencies and histiocytoses are trained to manage each child’s care from diagnosis to cure, we are able to offer continuous, comprehensive treatment overseen by the same doctor. Patients also benefit from the coordinated expertise of other pediatric subspecialists within Cincinnati Children’s who work closely with the immune deficiency physician.
The initial comprehensive evaluation can last from one to four days and includes:
After reviewing the test results, members of the care team talk at length with the family about the child’s health and treatment options. They also provide a written summary and treatment recommendations to the patient’s family and referring physician.
The HLH Center of Excellence treats a large population of children with Hemophagocytic lymphohistiocytosis (HLH), a disorder of the immune system.
When Hannah was diagnosed with hemophagocytic lymphohistiocytosis (HLH), her family came to Cincinnati Children’s for world-class care.
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