• Experts in Care and Evaluation

    Welcome to the Lung Transplant Program at Cincinnati Children’s Hospital Medical Center. Our team strives to provide comprehensive, multidisciplinary care for pediatric patients whose complex and challenging end-stage lung disease has not responded to other medical and surgical therapies. We believe that the best results happen for children when families, patients and the health care team work together. We welcome and encourage you to be involved in all parts of your child’s care.

    Sincerely,

    The CCHMC Lung Transplant Team

    Our Team

    Below is a list of the people you are likely to meet during the evaluation and their role in the transplant process.

  • The transplant pulmonologist and transplant nurse practitioner will: 

    • determine disease progression
    • recommend appropriate medical management
    • work in collaboration with the Lung Transplant Surgeons to determine appropriate timing for transplantation
    • serve as your primary pulmonary provider before lung transplant while waiting on the transplant list and for a minimum of three months following the transplant procedure
    • work closely with your medical team at home to ensure continuity of care

    The transplant surgeon will:

    • evaluate the surgical risks involved in the transplant of your child
    • discuss the risks and benefits of this process with you and your family
    • work in collaboration with the Transplant Pulmonologist and/or Nurse Practitioner to determine the severity of disease and appropriate timing of listing your child for transplant

    The transplant care manager will:

    • serve as your primary contact through the transplant process
    • be a resource for any transplant questions you or your child may have
    • coordinate your child’s care with the other members of the transplant team
    • provide education before and after transplant

    The social worker will:

    • assess support systems and resources
    • help with obstacles to your child’s care before and after transplant
    • provide emotional support for your family
    • assist in obtaining resources before, during and after the hospital stay

    The dietician will: 

    • perform a complete nutritional assessment
    • work with your family and the transplant team to develop a program that meets all of your child’s specific nutritional needs
    • monitor nutrition and growth throughout the transplant process

    The intake coordinator / administrative assistant will:

    • assist in obtaining records for the referring medical team
    • work with the scheduling team to coordinate complex evaluations and communicate with your family regarding your itineraries
    • can help you get in touch with a member of your team
    A child life specialist will: 

    • help your child to understand medical procedures, including the transplant surgery
    • help your child to cope with hospitalizations
    • assist you with setting limits for your child and dealing with emotional issues related to the transplant
    • give a tour of the facility

    A respiratory therapist will:

    • review airway clearance techniques and order of therapies
    • provide education on and monitoring of home spirometry (a pulmonary test that measures lung function) after transplant
    A pediatric psychologist will:

    • review cognitive and emotional functioning of your child and family
    • explain how the stress of lung transplantation on the entire family makes this an important and mandatory part of the evaluation
    • provide any necessary or needed psychology services and / or referrals for your child and family
    An exercise physiologist / physical therapist will:

    • evaluate exercise endurance, strength, posture, balance and conditioning of your child
    • develop an exercise program prior to and following transplantation
    • conduct six minute walk tests
    The transplant pharmacist will:

    • review medicines your child is taking and the ones ordered by the transplant team
    • provide education about the medicine your child is taking
    The infectious disease doctor will:

    • review your child’s previous infection history
    • provide the transplant team with recommendations regarding treating infections before and after transplant
    • review your child’s immunization history and recommend if any additional immunizations are needed
    • stay involved in your child’s care and be available for questions after your child leaves the hospital
    The transplant financial specialist will

    • review your financial situation and verify you have sufficient funds to cover expenses both pre and post transplant
    • work closely with your insurance company and help to explain the benefits of your plan
    • be available to answer questions related to financial arrangements for the transplant
    • collaborate with the Social Worker to assist in identifying additional funding resources as necessary
  •  A smiling child.
    Learn more about our program, team members and how we can help you.
  • Our Mission Statement

    The mission of the Lung Transplant Program is to ensure the best possible outcomes as defined by patient experience and value for children who undergo lung or multi-organ transplant by application of new discoveries and continuous improvement to provide compassionate and effective care.