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The evaluation will help the lung
transplant team to determine if transplantation is the best choice for your
child at this time. Before the evaluation is scheduled, we will need to:
The evaluation process takes place over 4 days and
in most cases does not require your child to be admitted to the hospital.
During the evaluation,
we hope to:
We will also want to make sure that you, your child and family
Tests your child may have during the evaluation:
On the last day of the evaluation, you will meet with the transplant
provider and transplant care manager to review all available results and to
discuss if the team feels your child is ready to be considered for transplant.
If the team recommends a transplant, your child will be placed on the
national waiting list as soon as possible. There are 3 steps to this process:
Your child will be seen in the Lung Transplant Clinic at CCHMC
routinely (weekly to every other week) while on the transplant list. As a
parent or caregiver, you are the most important member of the transplant team
once your child is on the waiting list. The transplant team depends on good
communication with you family to help provide the best healthcare possible.
When a lung becomes available, a transplant care manager will call or
page you. After your child arrives to the hospital, he/she will be admitted to
the Cardiac Intensive Care Unit (CICU).
At the scheduled time, your child will be taken to the operating room.
Transplanting a lung is a long, complex surgery. There are at least two
surgeons involved in your child’s transplant. One surgeon will be here in the
operating room with your child. A second surgeon is responsible for traveling
to the hospital where the donor is located and retrieving the donor lungs. The
surgery typically takes 6-8 hours.
Close monitoring and follow up are very important after a transplant.
You and your child will be required to remain within 90 miles of the hospital
for at least the first 3 months after the transplant surgery. You will be seen
1-2 times a week in the transplant clinic and will be receiving outpatient
physical therapy 2-3 times a week. We will be doing blood work and pulmonary
function testing frequently as well.
Our expectation for your child after
transplant is for he / she to have a near normal life. Your child will be able to
return to their regular routine, including school. You will return to Cincinnati Children’s
Hospital every 3-6 months for follow-up. You will complete and send to the
transplant team a weekly log of vital signs and home pulmonary function
monitoring, so our team can closely monitor for subtle changes in your child’s
medical condition. The transplant team will be working closely with your
child’s pediatrician and referring physician to ensure the best possible
Cincinnati's Ronald McDonald House has been caring for
critically ill children and their families for over 30 years. Led by a talented
and dedicated Board of Trustees, our caring staff and amazing volunteers work
to meet the needs of our guest families so they can focus on what it is most
important - their critically ill children.
Learn more via the Ronald McDonald website or call 513-636-7642.
To reach the Lung Transplant office, call 513-803-7009 or 1-800-344-2462 (extension 3-7009).
During the transplant evaluation, you will meet many people on the Lung Transplant Team.
3333 Burnet Avenue, Cincinnati, Ohio 45229-3026 | 1-513-636-4200 | 1-800-344-2462 | TTY: 1-513-636-4900
New to Cincinnati Children’s or live outside of the Tristate area? 1-877-881-8479
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