• Tell Me a Story: 'Cardiac Kids' Face Developmental Issues

    Watch Lydia Butler's story to learn how congenital heart disease and developmental disorders such as ADHD are linked.
  • Neurodevelopmental and Educational Clinic

    Specialized care for children with complex heart problems does not stop once your child’s heart condition is managed.

    The Heart Institute Neurodevelopmental and Educational Clinic (NDEC), directed by Dr. Haleh Heydarian, MD, is one of only a few programs in the country that provides individualized care designed to maximize your child’s future.

    How can the Heart Institute Neurodevelopmental and Education Clinic Help your Child?

    Research shows that children with complex heart problems are at a greater risk for neurodevelopment issues when compared to heart-healthy children. Many of these children experience one or more mild deficits across a range of areas. The NDEC can help with:

    • The developmental assessment of infants, toddlers, and pre-schoolers to maximize school preparedness 
    • School difficulties, such as problems with reading, writing, and math
    • Difficulties with speech and/or language in infants, toddlers, pre-schoolers, and school-age children
    • Feeding problems in infants, toddlers, and pre-schoolers 
    • Attention, behavioral and emotional problems
    • Problems getting along with friends and family
    • Issues with task management and organization
    • Delayed fine and gross motor skills

    Identifying these problems as early as possible allows children to gain access to beneficial supports while they are young, and builds a solid foundation for later learning and future success. 

    Our Step-by-Step Process

    We look forward to partnering with you to help your child reach their fullest potential. Our partnership will involve a step by step process that includes the five following steps:

    Step 1:  The initial Neurodevelopmental and Education Clinic Visit:  This day will include a screening visit where you and your family will meet with many different providers who will assess your child for any developmental concerns that need further evaluation.

    Step 2:  Comprehensive Evaluation: Our schedulers will work with you to set up the testing and follow-up appointments that were recommended during your initial visit.

    Step 3:  Case Conference: After your child's recommended follow-up appointments have been completed, the results of these evaluations will be discussed at our monthly case conference meeting with our entire Neurodevelopmental and Education Clinic Team. Once this conference has taken place, you will receive a phone call from one of our providers to discuss results and an updated plan. You will also receive a letter summarizing this information.

    Step 4:  Support in School:  If your child is currently in school or preparing to enter school, our Educational Care Team will partner with you to share the results of the comprehensive evaluation with your child’s school. Sharing this information will help to access the educational support that your child needs. The Educational Care Team is available to support pre-school and school-aged children; however, our educators are only able to travel 1 ½ hours away from the hospital. If you live beyond that time frame, school support can be given through a phone conference.

    Step 5:  Long-term follow-up:  As your child grows and develops, The NDEC will provide continuous monitoring and offer age-appropriate support, follow-up screening, reevaluation, and assist with recommended treatments.

    FOR MORE INFORMATION, PLEASE CALL OUR PROGRAM MANAGER, Sharon Flynn-Nelson, at 513-803-NDEC (6332).

    Our Neurodevelopmental Team

    The NDEC offers specialized neurodevelopmental care to children and adolescents with a history of heart disease. This clinic is unique for many reasons. Most importantly, you and your child will have access to ongoing neurodevelopmental care as your child grows and develops over time. Our multidisciplinary team provides a comprehensive neurodevelopmental evaluation for infants, toddlers, children and adolescents and provides families with the appropriate surveillance, screening, evaluation, and treatment resources needed to ensure the best outcome possible for your child. 

    Your child’s team of experts will include:

    • Pediatric Cardiologists 
    • Pediatric Cardiac Advanced Practice Registered Nurses and Care Managers
    • School Liaison and Educational Specialists 
    • Developmental-Behavioral Pediatricians
    • Pediatric Neurologists 
    • Occupational Therapists that specialize in pediatrics
    • Pediatric Nutritionists
    • Social Workers
    • Child Life Specialists

    The NDEC also refers to other specialized clinicians on an as needed basis, including, but not limited to: 

    • Cardiovascular Geneticists
    • Pediatric Psychologists
    • Pediatric Gastroenterologists
    • Speech and Language Pathologists
    • Cardiovascular Rehabilitation Specialists
  • neurodevelopmental-visual-1-kids-draw-image-430

    The Neurodevelopmental Clinic helps kids reach their full potential. 

  • Your Child's NDC Clinic Visit

    neurodevelopmental-callout1-tictactoe-250
    You child's clinic visit will include many experts who can help you and your child with his or her challenges. Read more about your child's visit to the Neurodevelopmental Clinic.
  • Our brochure

    Cover image from the 2012 Neurodevelopmental Clinic brochure.

    Download the Neurodevelopmental Clinic brochure and learn more about how we're helping kids reach their full potential.

    Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

    Guidelines published by the American Heart Association state that children with congenital heart disease should be screened early and regularly for a variety of cognitive developmental deficits. The guidelines help establish which children with heart disease are at the greatest risk. Read the complete guidelines.

  • Among the Best

    2014-cardiology
    Our cardiology and heart surgery program is ranked among the best in the country by U.S. News & World Report.> Awards and Rankings
  • Heart Institute Encyclopedia

    Heart Encyclopedia.
    Cincinnati Children's developed the Heart Institute Encyclopedia to provide easily accessible information on cardiac diseases, defects, disorders, and problems that may affect a child's heart. Also, learn about the new Heartpedia mobile app.> Encyclopedia