Neurofibromatosis Program

  • Support for Families

    In the Neurofibromatosis Program at Cincinnati Children’s, we encourage families to take advantage of the following resources.

    The Family Support Network at Cincinnati Children’s includes specialists from Child Life, Financial Services, Pastoral Care, the School Intervention Program, and Social Work. They can provide: 

    • Emotional, psychosocial and spiritual support
    • Assistance with schooling concerns
    • Community outreach and education
    • Information about additional resources (financial, insurance, community)

    Guest Services at Cincinnati Children’s helps make a stay in Cincinnati more comfortable and convenient. We provide assistance with lodging, ground transportation and other concerns.

    Our Clinical Concierge team schedules multiple medical appointments for families traveling to Cincinnati Children’s from outside the region.

    Families Share Stories of Hope

    At Cincinnati Children’s, we understand that it is helpful and reassuring to hear stories from families in similar situations. Read stories from other families

  • Additional Resources

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    Staying Connected

    CarePages, a free service that allows families to easily create web pages during a health challenge to keep friends and family informed.

    National Education, Advocacy Resources

    Cincinnati Support, Advocacy Resources

    Adolescent and Young Adult Resources


 
  • A young girl sits inside Cincinnati Children's.

    We offer support for families.