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For children with unusual lung disorders, the Rare Lung Diseases Program can improve and even transform their lives. The program is a unique service within the Division of Pulmonary Medicine. Under the direction of Raouf Amin, MD, the program includes some of the nation’s most respected experts in lung disease. They combine knowledge of the latest treatments with findings from advanced research to their care of children with the most complex lung diseases.
We diagnose and care for children with the rarest types of lung disease – diseases that affect fewer than 200,000 individuals nationwide. These conditions include interstitial lung disease (ILD), surfactant mutations, lung development disorders and lymphatic disorders. We also treat chronic lung disease associated with immunodeficiency / immune dysfunction disorders, rheumatologic disorders and many other systemic disorders.
One of the primary reasons children are referred to our program is for diagnosis of a complex, chronic lung problem. Many of the patients we care for have interstitial or other rare lung diseases. Our diagnostic approaches may include:
Other reasons for referral include:
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