• Kuwaiti Children with Rare Lung Disease Find Help at Cincinnati Children's

  • Life-Saving Treatment

    Bader Alshammari of Kuwaiti needed help for his daughter and her cousin, but doctors around the world turned them away. Robert E. Wood, MD, PhD a specialist in rare lung disease at Cincinnati Children’s, knew he could help the girls, who have hereditary pulmonary alveolar proteinosis. Dr. Wood has been able to save the girls' lives by washing sediment out of their lungs every few weeks.
  • Expert Care for the Most Complex Disorders

    For children with unusual lung disorders, the Rare Lung Diseases Program can improve and even transform their lives. The program is a unique service within the Division of Pulmonary Medicine.  Under the direction of Raouf Amin, MD, the program includes some of the nation’s most respected experts in lung disease. They combine knowledge of the latest treatments with findings from advanced research to their care of children with the most complex lung diseases.

    Conditions We Treat

    We diagnose and care for children with the rarest types of lung disease – diseases that affect fewer than 200,000 individuals nationwide. These conditions include interstitial lung disease (ILD), surfactant mutations, lung development disorders and lymphatic disorders. We also treat chronic lung disease associated with immunodeficiency / immune dysfunction disorders, rheumatologic disorders and many other systemic disorders.

    Referrals to our Program

    One of the primary reasons children are referred to our program is for diagnosis of a complex, chronic lung problem. Many of the patients we care for have interstitial or other rare lung diseases. Our diagnostic approaches may include:

    Other reasons for referral include:

    • Our interdisciplinary approach to caring for diffuse lung diseases, including team case conferences to review diagnosis and management.
    • Our collaboration with a child’s referring physician.
    • Family centered care – an approach that keeps family informed and involved.
    • Opportunities to participate in research studies at Cincinnati Children’s and elsewhere.
  • For Patients and Families

    The Rare Lung Diseases Program at Cincinnati Children’s has compiled support and information resources for patients and families, including medical and community resources.
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  • Contact / Refer

    The Rare Lung Diseases Program at Cincinnati Children’s accepts referrals from both physicians and families. Contact our grogram coordinator at 513-803-1332.

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