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If you have been told or suspect that your child has Rubinstein-Taybi syndrome (RTS), you have come to the right place. We are one of the country’s leading programs for the care of children with RTS. We provide expert confirmation of diagnosis as well as the latest treatments and support.
RTS is different for each child. While all children with RTS experience developmental delays and many have medical problems, these vary greatly with each child. There is no one approach that works for every child. Our program is located in the Division of Developmental and Behavioral Pediatrics.
Our services and support include:
We provide a continuum of care for individuals with RTS and their families from clinical care to newsletters, library services and support group connections. We publish a quarterly newsletter (RTS News) for families living with Rubinstein-Taybi syndrome that focuses on supporting families and sharing information. Most current published RTS articles are available through the Rubinstein Library as are many of the older published articles.
We understand that RTS can be challenging for the whole family. Our program collaborates with family support groups, resources, and parent-to-parent networks, such as:
2013 Family Weekend! Save the Date! June 15-17, 2013Location: CoCo Key Water Resort, Sharonville, OHContact: Megan Jackson at firstname.lastname@example.org or 765-326-0216
This fun event is open to any family members, caregivers, siblings, children or individuals with Rubinstein-Taybi Syndrome (RTS). If you are not staying overnight but want to come say hello, please join us! We hope to see you there!
Family Support MeetingSaturday, October 5, 201311:30am - 2pmCincinnati Children's Hospital Medical Center 3430 Burnet Avenue, 5th floor, Room 201Parking is located in the attached visitors' garage behind the building.Childcare is available with RSVP.
To RSVP or for more information about the RTS-OKI Family Support Group & the RTS Program, please contact: Amy ClawsonCoordinator, Division of Developmental & Behavioral Pediatrics513email@example.com
3333 Burnet Avenue, Cincinnati, Ohio 45229-3026 | 1-513-636-4200 | 1-800-344-2462 | TTY:1-513-636-4900
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