Rubinstein-Taybi Syndrome Program

  • Expert Diagnosis and Treatment

    If you have been told or suspect that your child has Rubinstein-Taybi syndrome (RTS), you have come to the right place. We are one of the country’s leading programs for the care of children with RTS. We provide expert confirmation of diagnosis as well as the latest treatments and support.

    Every Child is Unique

    RTS is different for each child. While all children with RTS experience developmental delays and many have medical problems, these vary greatly with each child. There is no one approach that works for every child.

    Our program is located in the Division of Developmental and Behavioral Pediatrics.

    What We Offer

    Our services and support include:

    • Confirming the RTS diagnosis
    • Offering best-practice treatments
    • Conducting educational outreach
    • Family support and networking

    Support for You and Your Family

    We provide a continuum of care for individuals with RTS and their families from clinical care to newsletters, library services and support group connections. We publish a quarterly newsletter (RTS News) for families living with Rubinstein-Taybi syndrome that focuses on supporting families and sharing information.  Most current published RTS articles are available through the Rubinstein Library as are many of the older published articles.

    We understand that RTS can be challenging for the whole family.  Our program collaborates with family support groups, resources, and parent-to-parent networks, such as:

    • Regional RTS-OKI (Ohio, Kentucky, Indiana), hosts quarterly meetings. This group is free to any child or individual who has Rubinstein-Taybi Syndrome (RTS), and their family members and caregivers.
    • Family Support Meeting
      Saturday, April 5, 2014
      11:30am - 2pm
      Cincinnati Children's Hospital Medical Center 
      3430 Burnet Avenue, 5th floor, Room 201
      Parking is located in the attached visitors' garage behind the building.
      Childcare is available with RSVP.

      To RSVP or for more information about the RTS-OKI Family Support Group & the RTS Program, please contact: 
      Amy Clawson
      Coordinator, Division of Developmental & Behavioral Pediatrics
      513-636-4723
      amy.clawson@cchmc.org

      2014 Family Weekend! Save the Date! 
      Date & Location: TBD
      Contact: Bill Mann at bmann@theppsgroup or 513-708-5611