Expert Diagnosis and Treatment
If you have been told or suspect that your child has Rubinstein-Taybi syndrome (RTS), you have come to the right place. We are one of the country’s leading programs for the care of children with RTS. We provide expert confirmation of diagnosis as well as the latest treatments and support.
Every Child is Unique
RTS is different for each child. While all children with RTS experience developmental delays and many have medical problems, these vary greatly with each child. There is no one approach that works for every child.
Our program is located in the Division of Developmental and Behavioral Pediatrics.
What We Offer
Our services and support include:
- Confirming the RTS diagnosis
- Offering best-practice treatments
- Conducting educational outreach
- Family support and networking
Support for You and Your Family
We provide a continuum of care for individuals with RTS and their families from clinical care to newsletters, library services and support group connections. We publish a quarterly newsletter (RTS News) for families living with Rubinstein-Taybi syndrome that focuses on supporting families and sharing information. Most current published RTS articles are available through the Rubinstein Library as are many of the older published articles.
We understand that RTS can be challenging for the whole family. Our program collaborates with family support groups, resources, and parent-to-parent networks, such as:
- Regional RTS-OKI (Ohio, Kentucky, Indiana), and hosts its quarterly meetings. This group is free to any child or individual who has Rubinstein-Taybi Syndrome (RTS), and their family members and caregivers.
Family Support Meeting
Saturday, April 6, 2013
11:30am - 2pm
Cincinnati Children's Hospital Medical Center
3430 Burnet Avenue, 5th floor, Room 201
Parking is located in the attached visitors' garage behind the building.
Childcare is available with RSVP.
2013 Family Weekend! Save the Date!
June TBD (subject to hotel facility availability)
Family Support Meeting
Saturday, October 5, 2013
11:30am - 2pm
Cincinnati Children's Hospital Medical Center
3430 Burnet Avenue, 5th floor, Room 201
Parking is located in the attached visitors' garage behind the building.
Childcare is available with RSVP.
To RSVP or for more information about the RTS-OKI Family Support Group & the RTS Program, please contact:
Amy Clawson
Coordinator, Division of Developmental & Behavioral Pediatrics
513-636-4723
amy.clawson@cchmc.org
- RTS USA Support Group
- RTS Parent Listserv.
To join, contact Janet Estes at janetestes@telus.net - Special Friends Foundation
