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The 22Q-VCFS Center at Cincinnati Children’s suggests these resources for families seeking information or support.
A family support network providing education, support and social activities for individuals and families affected by 22Q-VCFS. Email 22Q-VCFS@cchmc.org for information.
Our Family Support Network is there for you.
− Photos by Christiane Sears
− To view another photo, click small image below
Teens with 22q find they have many shared experiences.
A worldwide awareness day, and a chance to meet new friends.
Our teens learn coping skills, build friendships, and plan for their futures together.
During Family Support Network meetings, the kids get supervised play, leaving parents to relax, learn something new, and connect with other families.
Families bond together during Family Support Network meetings.
There are no limits for our kids!
During our Family Support Network meetings, teens get a chance to meet and learn from each other.
Bringing families together, spreading awareness, and making memories.
While parents meet and learn, kids are safe to play with friends who are just like them.
22Q isn’t stopping this kiddo.
The Dempster Family Foundation Awareness Tour stops at Cincinnati Children’s.
A syndrome is a unique pattern of characteristics or symptoms with a known or suspected cause. Before DNA testing was possible, genetic syndromes were named for the doctor who first described the condition, for the symptoms it includes, or both. It is more common now to name conditions for the underlying genetic cause. Because of the wide range of symptoms associated with 22q11.2 deletion syndrome, it was independently described as several different conditions and was given a variety of names including:
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