• For Patients and Families

    Resources & Information

    The 22Q-VCFS Center at Cincinnati Children’s suggests these resources for families seeking information or support.

    The Tri-State 22Q-VCFS Family Support Network

    A family support network providing education, support and social activities for individuals and families affected by 22Q-VCFS. Email 22Q-VCFS@cchmc.org for information.

    Other Resources

  • Join One of Our Family Events

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    Have a ball with us!

    Our Family Support Network is there for you.  

    − Photos by Christiane Sears

    − To view another photo, click small image below

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    Friends for life

    Teens with 22q find they have many shared experiences.

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    22q at the zoo

    A worldwide awareness day, and a chance to meet new friends.

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    Sharing, learning, bonding

    Our teens learn coping skills, build friendships, and plan for their futures together.

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    During Family Support Network meetings, the kids get supervised play, leaving parents to relax, learn something new, and connect with other families.

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    Swinging into summer

    Families bond together during Family Support Network meetings.

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    Play Ball

    There are no limits for our kids! 

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    During our Family Support Network meetings, teens get a chance to meet and learn from each other.

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    22q At The Zoo

    Bringing families together, spreading awareness, and making memories.

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    Summer days are meant for play

    While parents meet and learn, kids are safe to play with friends who are just like them.

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    22Q isn’t stopping this kiddo.

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    The Dempster Family Foundation Awareness Tour stops at Cincinnati Children’s.

  • How Did One Syndrome Get So Many Names? 

    A syndrome is a unique pattern of characteristics or symptoms with a known or suspected cause. Before DNA testing was possible, genetic syndromes were named for the doctor who first described the condition, for the symptoms it includes, or both. It is more common now to name conditions for the underlying genetic cause. Because of the wide range of symptoms associated with 22q11.2 deletion syndrome, it was independently described as several different conditions and was given a variety of names including:

    YearSyndrome Name Abbreviation Named for 
    1968DiGeorge syndrome DGS Dr. Angelo DiGeorge 
    1969 Cayler cardiofacial syndrome CCS Dr. G.G. Cayler and signs & symptoms 
    1976 Conotruncal anomaly face syndrome CTAF Signs & symptoms 
    1978 Velocardiofacial syndrome VCFS Signs & symptoms 
    1999 22q11.2 deletion syndrome 22q11.2DS Underlying genetic cause 
  • Contact Us

    Email: 22Q-VCFS@cchmc.org

    Phone: 513-803-1884