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Understanding a Down Syndrome Diagnosis
Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome
Down Syndrome Association of Greater Cincinnati has an Expectant Parent Program. They have volunteer parents who make themselves and their knowledge available to expectant parents and parents of babies newly diagnosed with Down syndrome. They offer an opportunity to ask questions and share experiences, information on Down syndrome and assistance in locating services.
National Down Syndrome Congress offers information for expectant parents, including An Expectant Parent’s Guide and other links.
National Down Syndrome Society offers a video, a guide for new and expectant parents, and other links. Some information is provided in Spanish in addition to English.
Ohio
Down Syndrome Association of Greater Cincinnati
Down Syndrome Association of Central Ohio (Columbus)
Down Syndrome Association of the Valley (Eastern Ohio)
International Mosaic Down Syndrome Association
Miami Valley Down Syndrome Association
The Up Side of Downs (Northeast Ohio)
Regional
Down Syndrome Association of Central Kentucky
Down Syndrome Indiana
Down Syndrome Support Association of Southern Indiana
K.I.D.S (Kentuckians Interested in Down Syndrome)
National
Down Syndrome Affiliates in Action
National Down Syndrome Congress
National Down Syndrome Society
Down Syndrome Educational International (formerly DownsEd) offers teaching materials for purchase
Handwriting without tears
IEP Toolkit for Down syndrome
Wrights Law Information about special education law, IEPs and IDEA
Dr Len Leshin Down syndrome health
Equipment to support play
Equipment to support speech development
Down syndrome nutrition resources
Recordings of presentations from Children’s Hospital Boston Down Syndrome Program
Woodbine Publishing offers many excellent books on Down syndrome for purchase.
Down Syndrome Research and Treatment Foundation
American Occupational Therapy Association
American Physical Therapy Association
American Speech-Language-Hearing Association
Help Me Grow
Ohio Department of Developmental Disabilities
