Tuberous Sclerosis Clinic

For Patients and Families

Managing your or your child’s tuberous sclerosis (TS) can be a complicated and difficult challenge. The TS Clinic at Cincinnati Children’s has collected the following resources to help you and your family better understand and manage TS. 

School Resources

The TS Clinic offers several services to assist our school-age patients:

• Providing documentation to school personnel regarding your child’s medical issues
• Advocating for your child

The following links can provide additional resources for parents and teachers:

• Educational considerations
• TS information for teachers

For more serious educational concerns, the following resources can assist children with TS and their families:

• Ohio Department of Education
• Southwestern Ohio Special Education Regional Resource Center
• Dena Hook, director of advocacy and education for the Tuberous Sclerosis Alliance.  Hook has many years of experience in advocating for children with disabilities and is available to help patients and families at our clinic. She is available two days a month in person at our clinic. Contact her at 1-800-225-6872 or e-mail, dhook@tsalliance.org.

Note that before we can provide information to your child’s school, you must complete a release form allowing us to share your child’s information.