Tuberous Sclerosis Clinic

  • Meet the Tuberous Sclerosis Specialists

    The Tuberous Sclerosis Clinic at Cincinnati Children's is home to specialists with a variety of backgrounds and areas of focus. As a team, this diversity makes us better prepared to care for your child's unique needs.

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    Director

    A photo of David Franz, MD.

    David Neal Franz, MD
    Director, Tuberous Sclerosis Clinic

    513-636-4222

    franz@cchmc.org

    David Neal Franz, MD

    Director, Tuberous Sclerosis Clinic

    Associate Director of Clinical Affairs, Division of Neurology

    Professor, UC Department of Pediatrics

    Phone: 513-636-4222

    Fax: 513-636-1888

    Email: franz@cchmc.org

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    Specialties

    Tuberous sclerosis (adults and children); neuropharmacology; neurocutaneous disorders; general pediatric neurology

    Biography

    David Neal Franz, MD, was born and raised in Dayton, Ohio. He received his undergraduate degree in History and Literature from Earlham College in Richmond, Indiana.

    After completing his training, he served as Assistant Professor of Neurology and Pediatrics at Wright State University before returning to Cincinnati Children's Hospital Medical Center.

    He established the Cincinnati Tuberous Sclerosis Clinic in 1993, to assist in the medical care of patients who have or are suspected of having tuberous sclerosis. The purpose of the clinic is not to replace care from the child's pediatrician or family physician, but to assist the primary care physician in dealing with those aspects unique to tuberous sclerosis that affect the child's health or development. The basis of the clinic is the realization that people with tuberous sclerosis are different from other individuals who have epilepsy, learning disabilities, behavior problems, etc.

    For too long, the unique problems found in this disease have been lumped together with similar disorders, despite the fact that research has shown that disorders of the brain, heart, kidney, and other organs in tuberous sclerosis are quite different.

    Education and Training

    MD: Ohio State University College of Medicine, Columbus, OH, 1985.

    Residency: Wright State University Affiliated Hospitals, Dayton, OH. 

    Fellowship: Children's Hospital Medical Center, Cincinnati, OH. 

    Certification: Pediatrics, 1990; Neurology with special competence in child neurology, 1992.

    Publications

    View PubMed Publications

    Faculty

    A photo of Doctor Kerry Crone.

    Kerry R. Crone, MD

    Professor, UC Department of Surgery

    Phone: 513-636-4726

    Email: kerry.crone@cchmc.org

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    Specialties

    Clinical Interests

    Minimal access surgery; including endoscopic surgery; chiari malformations; brain tumors; design and implementation of patient safety initiatives and clinical outcomes studies

    Research Interests

    Chiari malformations; brain tumors; telemedicine 

    Biography

    Dr. Kerry Crone is a professor of neurosurgery and pediatrics at Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine. He was director of the Division of Pediatric Neurosurgery at Cincinnati Children’s Hospital Medical Center beginning in July 1999.

    Dr. Crone's specialty interests include minimal access surgery and its applications for children with brain tumors, hydrocephalus and complex cysts within the brain. He has lectured extensively and taught other neurosurgeons these techniques at national and international meetings and courses and written numerous scholarly articles about the use of endoscopy and other tools to allow for these minimally invasive operations and has even been instrumental in designing some of the tools used by neurosurgeons around the world in visualizing and navigating during these operations.

    He also has developed a very large and well renowned practice specializing in pediatric patients from infancy to young adulthood with Chiari malformations, offering not only the latest in imaging and surgical approaches, but expertise based on extensive research in this field.

    The design of our neurosurgical operative suite, which was the first of its kind in the world, and incorporates intraoperative MRI with specially designed pediatric operating beds and computer guided navigation instruments to allow for maximal safety during resection of brain tumors and other complex operations of the brain and spine, was guided by his experience and expertise.

    Education and Training

    MD: University of Cincinnati, Cincinnati, OH, 1978

    Residency: Neurosurgery, Bowman-Gray School of Medicine, Winston-Salem, NC

    Fellowship: Pediatric Neurosurgery, The Hospital for Sick Children, Toronto, Ontario, Canada, 1986

    Publications

    View PubMed Publications
    A photo of Murray Dock.

    Murray Dock, DDS, MSD
    Director, Residency Program

    513-891-0660

    murray.dock@cchmc.org

    Murray Dock, DDS, MSD

    Director, Residency Program

    Associate Professor, UC Department of Pediatrics

    Phone: 513-891-0660

    Fax: 513-791-4925

    Email: murray.dock@cchmc.org

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    Specialties

    Clinical Interests

    Primary care; cleft palate; sedation; dental pharmacology, dental treatment resident education

    Research Interests

    Enamel pitting and oral fibromas in tuberous sclerosis patients; familial vs. sporadic disease; comparison of PACU recovery in children undergoing dental rehabilitation; effectiveness of periodic reminder cards as a means to improve plaque index scores; dental health of patients following sialodochoplasty 

    Education and Training

    DDS: Indiana University School of Dentistry, Indianapolis, IN, 1983.

    MSD: Indiana University School of Dentistry, Indianapolis, IN, 2000.

    BSPharm: Butler University College of Pharmacy, Indianapolis, IN, 1979.

    Residency: Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 1987.

    Fellowship: Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 1988.

    Certification: American Board of Pediatric Dentistry, 1994.

    Publications

    View PubMed Publications

    A photo of Timothy Knilans.

    Timothy K. Knilans, MD
    Director, Clinical Cardiac Electrophysiology and Pacing

    513-636-7269

    timothy.knilans@cchmc.org

    Timothy K. Knilans, MD

    Director, Clinical Cardiac Electrophysiology and Pacing

    Professor, UC Department of Pediatrics

    Phone: 513-636-7269

    Fax: 513-636-3952

    Email: timothy.knilans@cchmc.org

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    Specialties

    Clinical Interests

    Cardiac electrophysiology and pacing; radio frequency ablation; tilt table testing

    Research Interests

    Cardiac arrest; sudden cardiac death

    Education and Training

    MD: University of Cincinnati, Cincinnati OH, 1983.

    Residency: Cincinnati Children's Hospital, Cincinnati OH 1983-1986.

    Fellowship (Pediatric Cardiology): Cincinnati Children's Hospital, Cincinnati OH 1986-1989.

    Fellowship (Cardiac Electrophysiology): St. Vincent Hospital, Indianapolis IN 1990-1991.

    Fellowship (Pediatric cardiac Electrophysiology): Texas Children's Hospital, Houston TX 1991.

    Certification: Pediatrics, 1989 (Recertified 1999); Pediatric Cardiology, 1992 (Recertified 1998).

    Publications

    View PubMed Publications
    A photo of Darcy Krueger.

    Darcy A. Krueger, MD, PhD
    Associate Director of Research, Division of Neurology

    513-636-4222

    krueger_darcy@cchmc.org

    A photo of Darcy Krueger.

    Darcy A. Krueger, MD, PhD

    Associate Director of Research, Division of Neurology

    Assistant Professor, UC Department of Pediatrics

    Phone: 513-636-4222

    Email: krueger_darcy@cchmc.org

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    Specialties

    Clinical Interests

    Tuberous sclerosis; general neurology

    Research Interests

    Tuberous sclerosis; clinical use of mTOR inhibitors; role of mTOR pathway in neurological disease

    Education and Training

    MD: Saint Louis University School of Medicine, St. Louis, Missouri, 1995-1997; 2000-2002.

    PhD: Saint Louis University Graduate School Biochemistry and Molecular Biology, St. Louis, Missouri, 1997-2000.

    Publications

    View PubMed Publications

    A photo of David Nelson, MD.

    Daniel A. Nelson, MD
    Medical Director, Child Psychiatry Unit

    513-636-4788

    psychiatryresponse@cchmc.org

    Daniel A. Nelson, MD

    Medical Director, Child Psychiatry Unit

    Associate Professor, Division of Pediatric Psychiatry

    Phone: 513-636-4788

    Email: psychiatryresponse@cchmc.org

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    Specialties

    Inpatient and outpatient child psychiatry diagnosis, treatment and research; bipolar and mood disorders; attention deficit hyperactivity disorder; childhood trauma; behavioral disorders 

    Biography

    Dr. Nelson is a recognized authority in counseling children and families who have experienced trauma -- from natural and man-made disasters to abuse. After the September 11th attacks in New York City, Nelson, along with other psychiatrists and psychologists, provided assistance to many victims' families.

    In addition, Dr. Nelson supervised the Family Notification Center after the Oklahoma City bombing, which he designed to provide comprehensive psychological support to minimize the effects of trauma in that city. Nelson, who directs the inpatient child psychiatric unit at Cincinnati Children's Hospital Medical Center, also provides training and education in response to trauma. In 1999, he worked with teachers and counselors following a tornado that killed four people in the Cincinnati area and destroyed dozens of homes.

    Dr. Nelson is on the advisory board for the National Center for School Crisis and Bereavement.

    Education and Training

    MD: University of Oklahoma Health Sciences Center, Oklahoma City, Okla., 1985.

    Residency: Medical Center Hospital / Audie Murphy, San Antonio, Texas, 1987. 

    Fellowship: San Antonio Children's Center, Southwest Neuropsychiatric Institute, San Antonio, Texas, 1989. 

    Certification: General Psychiatry, 1992; Child and Adolescent Psychiatry, 1994.
    A photo of Elizabeth Schorry.

    Elizabeth K. Schorry, MD
    Director, Neurofibromatosis Clinic

    513-636-0121

    elizabeth.schorry@cchmc.org

    Elizabeth K. Schorry, MD

    Director, Neurofibromatosis Clinic

    Director, Adult Neurofibromatosis Clinic

    Associate Professor, UC Department of Pediatrics

    Phone: 513-636-0121

    Fax: 513-636-7297

    Email: elizabeth.schorry@cchmc.org

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    Specialties


    Biography

    Elizabeth Schorry, MD, received her undergraduate degree at the University of Cincinnati and her MD at the University of Michigan in Ann Arbor, Michigan.

    Dr. Schorry completed a residency in pediatrics and a fellowship in medical genetics at Cincinnati Children's Hospital Medical Center. She has been a faculty member in the Division of Human Genetics at Cincinnati Children's since 1988.

    Dr. Schorry provides medical management, genetic assessment and genetic counseling for children with a wide range of genetic disorders and congenital anomalies. She has a special interest in neurofibromatosis and tuberous sclerosis.

    Education and Training

    BS: Biology, University of Cincinnati, Cincinnati, OH, 1977.

    MD: University of Michigan, Ann Arbor, MI, 1982.

    Residency: Pediatrics, Children's Hospital Medical Center, Cincinnati, OH, 1982-1985.

    Fellowship: Genetics, Children's Hospital Medical Center, Cincinnati, OH, 1985-1988.

    Certification: American Board of Pediatrics, 1987; Clinical Genetics, American Board of Medical Genetics, 1987.

    Publications

    View PubMed Publications

    A photo of Constance West.

    Constance E. West, MD
    Director, Pediatric Ophthalmology

    513-636-4751

    Constance E. West, MD

    Director, Pediatric Ophthalmology

    Associate Professor, UC Department of Ophthalmology

    Phone: 513-636-4751

    Fax: 513-636-7911

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    Specialties

    Strabismus; optic pathway glioma in children; retinal hemorrhages in shaken baby syndrome; construction of a portable optics bench for use in teaching ophthalmic optics and refraction to ophthalmology residents

    Education and Training

    BS: Massachusetts Institute of Technology, Cambridge, MA, 1980.

    MD: University of Massachusetts Medical School, North Worcester, MA, 1986.

    Internship: St. John's Mercy Medical Center, St. Louis, MO, 1986-1987.

    Residency: Ophthalmology,Barnes Hospital, Washington University Medical Center, St. Louis, MO, 1987-1990.

    Fellowship: Pediatric Ophthalmology and Strabismus,Wilmer Ophthalmological Institute, Johns Hopkins University School of Medicine, Baltimore, MD 1990-1991.

    Publications

    View PubMed Publications

    Staff

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    Karen D. Agricola, MSN, APRN, FNP-BC
    Advanced Practice Registered Nurse, Tuberous Sclerosis

    513-636-4222

    TSclinic@cchmc.org

    DefaultUser

    Karen D Agricola, MSN, APRN, FNP-BC

    Advanced Practice Registered Nurse, Tuberous Sclerosis

    Phone: 513-636-4222

    Email: TSclinic@cchmc.org

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    Education and Training

    MSN-FNP: University of Kentucky, Kentucky, 1990.

    Internship: Family Practice, Portland Family Health Center, Louisville, Ky 1990.

    Certification: Family Nurse Practitioner since 1990.

    A photo of Jennifer Glass.

    Jennifer E. Glass, LGC
    Genetic Counselor II, Division of Human Genetics

    513-803-3264

    jennifer.glass@cchmc.org


    A photo of Cindy Tudor.

    Cindy Tudor, RN, APRN, CNP
    Nurse Practitioner, Division of Neurology

    513-636-4222

    cindy.tudor@cchmc.org

    Cindy Tudor, RN, APRN, CNP

    Nurse Practitioner, Division of Neurology

    Phone: 513-636-4222

    Email: cindy.tudor@cchmc.org

    No photo available

    Linda L. Wallace, LISW
    Social Worker, Division of Social Services

    513-636-9096

    linda.wallace@cchmc.org