Consultation and Evaluation
Once the Bone Marrow Failure Clinic at Cincinnati Children's Hospital Medical Center determines a child's diagnosis, families consult with educational and genetic counselors and receive a suggested treatment outline. The child can be treated and followed by the referring physician in collaboration with our clinic. Our team will provide the child and referring physician with a comprehensive care plan for the child.
Many children with hereditary bone marrow failure syndromes have various other congenital anomalies that a variety of specialists from Cincinnati Children's treat. Some of these include abnormal bone structure, poor growth and development with endocrine abnormalities, congenital heart or kidney defects and abnormalities of the gastrointestinal tract.
Treatment
The child's care plan can involve many different treatment options. A few examples are bone marrow transplant and drug therapy for children with aplastic anemia. Drug therapy can be provided on an inpatient or outpatient basis at Cincinnati Children's, or the treatment protocol can be sent to the referring physician.
Before The Visit
Prior to visiting, the clinic must receive the needed clinical information from the referring physician in order to plan and schedule the evaluation. The evaluation typically lasts 2 - 4 days and is tailored to meet the individual needs of the patient. During this time, families usually stay at the Ronald McDonald House adjacent to the hospital or at other close-by accommodations.
After The Visit
After the visit, a comprehensive patient summary is sent to the family and the referring physician. Follow-up visits are coordinated with the referring physician, but most patients are asked to return at least annually.
