Personalized Services for Families
The Hemophilia Program at Cincinnati Children's Hospital Medical Center offers personalized services for patients and families, including the following:
Home Visits
The nurse coordinator works closely with families and offers home visits. Home visits are arranged around the family schedule. They allow an informal opportunity to ask questions about hemophilia.
School Visits
As a part of comprehensive care, the hemophilia team assists families by providing schools with information about hemophilia. Personalized visits by team members to the child's school can be arranged.
The hemophilia team assists families with special school needs such as tutoring, transportation and development of individual education plans. Career and vocational planning resources and scholarship information are also provided.
Travel Letter
Before traveling, you can call us to ask for a travel letter. This letter verifies the child's hemophilia type and treatment. If you must go to a hospital while out of town, the letter can facilitate rapid and appropriate therapy. We can also give you a list of the hospitals nearest your travel route that offer hemophilia treatment.
Emergency Identification
You will receive an individual identification card stating your child's type of bleeding disorder, severity, appropriate treatment and factor dosage, allergies and other specialized medical information. This card will be updated at clinic visits.
