Related Resources
At the Hemophilia Center at Cincinnati Children's Hospital Medical Center, we encourage families to take advantage of the following resources:
The Family Support Network at Cincinnati Children’s includes specialists from Child Life, Financial Services, Pastoral Care and Social Work. These network resources can provide:
- Emotional, psychosocial and spiritual support
- Assistance with schooling concerns
- Community outreach and education
- Information about additional resources (financial, insurance, community)
- First Steps, a support group for patients and families
- Guest Services, whose staff can provide assistance with lodging, ground transportation and other concerns
Hem/Onc Kids Camp
The Cancer and Blood Diseases Institute at Cincinnati Children’s hosts a week-long summer camp every year. “Hem / Onc Kids Camp” takes place at Joy Outdoor Education Center in Clarksville, Ohio. The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities. The camp is an opportunity for kids ages 7-16 to develop new skills, form lasting friendships and build their self-esteem, all while having a great time. Patients are encouraged to bring a sibling.
Families Share Stories of Hope
At Cincinnati Children's, we understand that it is helpful and reassuring to hear stories from families in similar situations. Read stories from other families.
Newsletter and Pamphlet Resources
Bloodline
Bloodline is a newsletter published by the Hemophilia Center to provide families with information about the ever-changing field of hemophilia and other bleeding disorders.
Do the 5: A Guide for Living with Hemophilia
This comprehensive guide includes fact sheets covering all the essentials that you need to know about living with hemophilia.
Parent Empowerment Newsletter
This newsletter is designed for families affected by bleeding disorders and is produced by a parent of a child with hemophilia.
Passport for Life: A Support Program for Everyday Living with Hemophilia
This comprehensive support program from Baxter International Inc. and HealthMedia encourages appropriate treatment adherence and patient support.
Additional Resources
Other organizations provide extensive support and education for patients and families dealing with hemophilia, including:
Staying Connected
- CarePages, a free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Greater Cincinnati Support and Advocacy
International Education, Advocacy and Support
