Colorectal Resources

External Colorectal Resources for Patients and Families

Support Groups l Housing l Summer Camps l International Organizations l  Request an Appointment

The Colorectal Center at Cincinnati Children's Hospital Medical Center provides links to additional information and resources for patients and families:

Support Groups

• Hirschsprung's and Motility Disorders Support Network / HMDSN
  The Hirschsprung's and Motility Disorders Support Network / HMDSN is an online network of people and families with children who suffer from Hirschsprung's Disease and other gastrointestinal motility disorders. HMDSN also offers a group specifically for adults with motility disorders. 
• IA Parents Support Group 
  Offering information, support and a host of resources, including monthly online chats with medical specialists specifically for parents of children born with imperforate anus, Hirschsprung's Disease and other types of anorectal malformations.
• Parents Helping Parents
  Parents Helping Parents helps to meet children's special needs.
• Partnership for Parents
  A support network for parents of children with serious illnesses.
• Pull Through Network
  The Pull Through Network offers a forum of exchange of information among parents with common concerns in colorectal problems.
• United Ostomy Associations of America
  UOAA is an association of affiliated, nonprofit, support groups who are committed to the improvement of the quality of life of people who have, or will have, an intestinal or urinary diversion.
• VACTERL Network
  The VACTERL Network was established to provide support to families who have a child born with VACTERL / VATER or adults with VACTERL.
• VATER Connection 
  The VATER Connection connects families to families and organizations involved in the VATER Syndrome.  
• Yahoo! Groups Vater Association
  A support group for people in the Vater Association Community.

Other Helpful Resources

• Birth Defects Research Center for Children
  Parents can access free birth defect information, parent networking resources and birth defect research through the National Birth Defect Registry.

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Housing

• Guest Services
  Call Guest Services at Cincinnati Children's for special pricing at many hotels throughout the area.
• Ronald McDonald House 
  The Ronald McDonald House is a home-away-from-home for families of seriously ill children undergoing critical medical treatment at Cincinnati Children's.

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Summer Camps

• Youth Rally
  The Youth Rally is a summer camp, organized and run by the Youth Rally Committee (YRC), providing a non-threatening environment for adolescents between the ages of 11 and 17 with bowel or bladder dysfunction.

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International Organizations

• AH-Potilaat Yhdystis
  Organization in Finland providing information about anorectal malformations.
• Ano Rektal Malformasyon
  Organization in Turkey providing information about anorectal malformations.
• APMAR
  Organization in Portugal providing information about anorectal malformations.
• Associazione Italiana per le Malformazioni Anorettali / AIMAR
  An anorectal malformation organization in Italy. 
• Bowel Group for Kids Inc.
  The Australian Bowel Group for Kids Inc. was formed in 1996 by parents and pediatric professionals. This support group is network available to parents who have a child with disordered gastrointestinal motility.
• Care My Colostomy
  Organization in India providing A to Z information about anorectal malformations.
• Itmut
  Israel-based organization providing information about anorectal malformations.
• Norsk Forening for Analatresi
  Organization in Norway providing information about anorectal malformations.
• NZ-Australia ACE and BOWEL Network
  Support group in New Zealand and Australia for parents with children who have a variety of congenital or chronic bowel conditions such as Hirschsprung's Disease, anorectal malformations, Neuronal Intestinal Dysplasia or are still undiagnosed.
• Pediatric Continence Association of Australia (PCAA)
  Australia-based organization providing information on all aspects of bowel and bladder conditions in children and young people.
• SoMA e.V.
  Organization in Germany providing information about anorectal malformations, rectal atresia, anal atresia and  VACTERL syndrome.
• TEF VATER International Support Group 
  The TEF VATER International Support Group offers a supportive online network for parents of children born with VATER Syndrome. 
• Vereniging Anusatresie
  Organization in Holland providing information about anorectal malformations.

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Request an Appointment or Contact the Colorectal Center at Cincinnati Children's

For more information or to request an appointment, please contact the Colorectal Center at Cincinnati Children's.

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Find a Service Alphabetically

Colorectal Center

• Colorectal Center
• ARMS Outreach Program
• Imperforate Anus / Anorectal Malformations
• Colorectal Resources
  • Colorectal Resources
  • External Resources for Patients and Families
  • Bibliographical Resources by Drs. Peña and Levitt
  • Colorectal Center Parent Education Topics
• Colorectal Questions / Answers
• Faculty and Staff
• Contact Us
• Idiopathic Constipation
• Request an Appointment
• Other Colorectal Disorders
• Patient Stories in the News