Patient Advocacy

Overview

The Cincinnati Center for Eosinophilic Disorders at Cincinnati Children's Hospital Medical Center works closely with various non-profit advocacy organizations that help serve children and adults living with an eosinophilic disorder.

CURED: Campaign Urging Research for Eosinophilic Disorders

CURED is a non-profit organization dedicated to raising funds to aid in research and public awareness of eosinophilic disorders. Learn more about CURED or how to get involved with their upcoming fundraising opportunities.

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APFED: The American Partnership for Eosinophilic Disorders

APFED is a non-profit advocacy organization for those living with eosinophilic disorders. They serve as a resource for patients, their families, physicians and the medical community by increasing awareness of eosinophilic disorders and providing funding for research. Learn more information about APFED and their upcoming EOS Connection 2006.

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NEED: The National Eosinophilic Enteritis Disease Foundation

The National Eosinophilic Enteritis Disease (NEED) Foundation is dedicated to:

  • Increasing the awareneess of Eosinophilic Enteritis (EE) and related diseases for the benefit of EE disease sufferers, families and health care professionals
  • Promoting professional research in EE and related diseases
  • Assisting in resolving treatment and quality-of-life obstacles
  • Positively influencing federal, state and local government policy to benefit EE disease sufferers.

Learn more about NEED.

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Eosinophilic Tucson

Eosinophilic Tucson is a newly founded support group in Tucson, Arizona, providing patient advocacy to those in the Tucson area and from around the world. This group, founded by three determined mothers in the Tucson area, recently made national news by getting a bill passed through congress that requires insurance companies to cover the use of elemental formulas in the treatment of eosinophil-associated gastrointestinal disorders. Read more about this exciting story and this organization.

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FABED: Families Affected By Eosinophilic Disorders

FABED is a patient advocacy and support group based in the United Kingdom raising awareness and providing support to families and individuals with eosinophil associated disorders. Learn more about FABED.

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The Eosinophilic Disease Society (TEDS)

The Eosinophilic Disease Society (TEDS) is dedicated to allowing other people with EGIDs and their families share their experiences, providing information about these diseases, and promoting research. Learn more about TEDS.

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The Food Allergy Project: Saving Children's Lives

The Food Allergy Project: Saving Children's Lives is dedicated to reversing the dangerous trend of children who have their lives tragically cut short due to allergic reactions to common foods. Learn more about the Food Allergy Project.

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Children's Magic: Children's Milk Allergy and Gastrointestinal Coalition

The Children's Milk Allergy and Gastrointestinal Coalition (MAGIC) is committed to promoting health care coverage and reimbursement of amino acid-based elemental formulas for children who are unable to consume a natural, life-sustaining diet due to various allergies or diseases, such as eosinophilic disorders. Childre''s MAGIC is composed of parents, organizations, institutions, and like-minded individuals. Learn more about Children's MAGIC.

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