Request an Appointment at the Marfan / Ehlers-Danlos Clinic
The Marfan / Ehlers-Danlos Syndrome Clinic team at Cincinnati Children's Hospital Medical Center prefers that each patient provide a written referral from a physician who is willing to speak with a member of the clinical staff, if desired.
Written referrals allow the physicians and genetic counselor to serve as a resource for other healthcare professionals caring for and managing many of the day-to-day symptoms of the patients. Referrals from primary care or managing physicians are also helpful for billing and insurance purposes.
Referrals can be faxed to the attention of the Marfan / Ehlers-Danlos Syndrome Clinic, 513-636-7297. Please include:
- Referring physician's name
- Full address
- Phone number
- Patient information
- Reason for referral
If a referral is requested by Brad T. Tinkle, MD, PhD, Richard Meyer, MD, or Carrie Atzinger, MS, the patient must supply relevant medical records for review PRIOR to scheduling the appointment, if possible. Records can be faxed to 513-636-7297.
Getting Insurance Approval
Many health care plans have treatment network requirements or other restrictions regarding out-of-area benefits. The patient must manage any insurance or other health coverage pre-authorizations or other requirements PRIOR to scheduling an appointment. In some instances, we may be able to direct patients to providers in their area who are knowledgeable about Marfan syndrome or EDS.
Downloadable Marfan / Ehlers-Danlos Syndrome Clinic Referral Form
Download a referral form (54k) for the Marfan / Ehlers-Danlos Syndrome Clinic in portable document format (.pdf).
Once a referral form is received, the Scheduling Center will contact the patient to schedule an appointment and echocardiogram. To contact the Scheduling Center directly, please call 513-636-4432.
Pain Management
Many individuals come to us who are experiencing chronic pain. We make referrals to pain management specialists and physical therapists for patients within the Greater Cincinnati area and will make general recommendations for patients outside of the Cincinnati area, but we do not perform pain management ourselves.
We are also willing to serve as a resource for other health care professionals who have questions regarding how specific symptoms are related to Marfan syndrome or EDS and how they should be managed in relation to the underlying condition.
Contact the Marfan Syndrome / Ehlers-Danlos Syndrome Clinic
The Marfan Syndrome / Ehlers-Danlos Syndrome Clinic is open on Wednesdays and can be reached at 513-636-4351.
