Request an Appointment at the Marfan / Ehlers-Danlos Clinic
The Marfan / Ehlers-Danlos Clinic team at Cincinnati Children's Hospital Medical Center prefers that each patient provide a written referral from a physician who is willing to speak with a member of the clinical staff, if desired.
Written referrals allow the physicans and genetic counselor to serve as a resource for other health care professionals caring for and managing many of the day-to-day symptoms of the patients. Referrals from primary care or managing physician are also helpful for billing and insurance purposes.
Referrals can be faxed to the attention of the Marfan / Ehlers-Danlos Syndrome Clinic, 513-636-7297. Please include:
- Referring physician's name
- Full address
- Phone number
- Patient information
- Reason for referral
If a referral is requested by Richard Wenstrup, MD, Richard Meyer, MD, or Erin Miller, MS, the patient must supply relevant medical records for review PRIOR to scheduling the appointment, if possible. Records can be faxed to 513-636-7297.
Getting Insurance Approval
Many health care plans have treatment network requirements or other restrictions regarding out-of-area benefits. The patient must manage any insurance or other health coverage pre-authorizations or other requirements PRIOR to scheduling an appointment. In some instances, we may be able to direct patients to providers in their area who are knowledgeable about Marfan syndrome or EDS.
A downloadable referral form is available in PDF format below. Referrals may be faxed to 513-636-7297 with attention to the Marfan Syndrome / Ehlers-Danlos Syndrome Clinic. Once a referral form has been received, the Scheduling Center will contact the patient to schedule an appointment and echocardiogram. To contact the Scheduling Center directly, the patient may call 513-636-4432.
Downloadable Marfan / Ehlers-Danlos Syndrome Clinic Referral Form
Download the Marfan / Ehlers-Danlos Syndrome Clinic Referral Form (54k) in portable document format (.pdf).
You must have Adobe Acrobat" Reader installed on your computer to read this file. You can download Adobe Acrobat" Reader at Adobe's Web site by selecting the version appropriate for your type of computer.
Pain Management
Many individuals come to us who are experiencing chronic pain. We make referrals to pain management specialists and physical therapists for patients within the Greater Cincinnati Area and will make general recommendations for patients outside of the Cincinnati area, but we do not perform pain management ourselves.
We are also willing to serve as a resource for other health care professionals who have questions regarding how specific symptoms are related to Marfan syndrome or EDS and how they should be managed in relation to the underlying condition.
