Not all children with chronic debilitating illnesses can be managed at home and therefore require care in some type of long-term, or extended care, facility. These facilities are often necessary for multiple reasons, including:

  • The severity or complexity of the illness and/or the inability to set up and maintain adequate home care or other needed services within the community.
  • Some caregivers are short handed or disabled themselves.
  • As children with severe disabilities are now living longer and their parents aging, some families are unable to provide the necessary care.

The Complex Care Center provides information and resource to families to learn about residential options.