Genetic Test Results: Do You and Your Teen Want to Learn All, Some or None?
Research Study for Teens 13 to 17 Years Old and a Parent
What: To determine why teens and parents choose to learn or not learn genetic test results for certain diseases as well as how they feel about their choices and learning their test results
Who: Teens 13 to 17 years old who are able to make independent decisions and their parent
Pay: Up to $50 for time, effort and travel
Contact: Larra Gem Parsley | larragem.parsley@cchmc.org | 513-803-7985
Developmental Delays Study for Children and Teens 5 to 17 Years Old
What: A study to learn about brain and behavioral problems associated with Fragile X Syndrome (FXS) and how they are connected with FXS-related genetic factors
Testing results will be compared from people with FXS and without FXS
Who: Children and
teens 5 to 17 years old who have developmental delays (other than FXS)
Pay: Up to $80 for time, effort and travel
Contact: Kara Rattermann | kara.rattermann@cchmc.org | 513-636-0526
Study for Healthy Children and Teens
What: A study to compare the differences in the metabolism of healthy children with that of children who have respiratory infections such as pneumonia
Who: Healthy children 3 months to 18 years old
What’s Involved: Submission of up to 3 urine samples and 2 nasal swabs
Pay: Up to $50 per child (maximum 2 children per family) for completing the samples and a follow-up survey
Contact: Cory Pfefferman | meep.study@cchmc.org | 513-803-1579