Why are we doing this research?
Cincinnati Children’s is conducting an intervention study for parents of children with Down syndrome and behavioral problems to improve outcomes for the family.
What will happen in the study?
This study includes 9 visits over 20 weeks. Here are some of the things that will happen in this study:
You and your child will:
- Wear a sleep (actigraph) watch for three separate weeks during the study.
- Come to Cincinnati Children’s for three visits to complete questionnaires and have him/her evaluated for their cognitive and executive functioning (ability to plan, solve problems, etc.).
- Complete short behavior diaries and sleep diaries for three separate weeks during the study.
- Come to Cincinnati Children’s to take part in hourly educational sessions for 5 weeks.
Parents interested in having their child participate will be given a consent form that thoroughly explains all of the details of the study. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.
What are the bad things that can happen from this research?
Your child may feel frustrated or anxious while completing the tests.
Other possible discomforts will be discussed with parents or guardians interested in learning more about the study.