Clinical Trials / Research Studies

Spina Bifida Study Which Can Be Completed Virtually For Providers

Why are we doing this research?

Cincinnati Children’s is conducting a research study to learn more about the difficulties and supports that impact individuals with spina bifida who are transitioning from pediatric to adult care.

Who can participate?

Healthcare providers of teens or young adults with spina bifida may be eligible to participate.

Conditions

Spina Bifida
Disabilities: Developmental
Disabilities: Physical

What will happen in the study?

If you agree to participate, you will be asked to complete some basic demographic surveys about yourself online.

We will also ask you to be part of an individual interview, conducted by a member of the study team. The interview will take about 30 minutes. It will be audio-recorded and take place in person, or virtually on Zoom.

You will be given a consent form that thoroughly explains all of the details of the study. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.

What are the good things that can happen from this research?

You will not have a direct benefit from participating in this study, but the knowledge we gain from this study could help us understand what is needed to better help teens and young adults with spina bifida successfully transition to adulthood.

What are the bad things that can happen from this research?

Possible risks and discomforts will be discussed with those interested in learning more about the study.

Will you/your child be paid to be in this research study?

Participants will receive $10 to take part in a 30-minute in person or virtual interview.

Contact

Brittany Spicer
brittany.spicer@cchmc.org
513-803-5320
Cincinnati Children’s Hospital Medical Center
3333 Burnet Ave.
Cincinnati, OH 45229-3039

Study Doctor

Jason Woodward, MD, MS
Developmental & Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center

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