Bowel Group for Kids
Facebook groups: To join these groups, search for these terms
within Facebook and follow prompts to see discussions, post and comment.
- “Imperforate Anus / Bowel Management”
- “Imperforate Anus in
- “Imperforate Anus USA,”
- “Imperforate Anus International.”
- “OEIS/Cloacal Exstrophy”
- “Chronic Idiopathic Constipation”
- "Pull-Thru Network"
Hirschsprung’s & Motility Disorders Support Network (HMDSN)
Parents Helping Parents
The Spina Bifida Association
TEF / VATER Support Network
United Ostomy Associations of America, Inc.
To join support groups on yahoo, search for a specific topic (ex. IA-Parents, Imperforate Anus, Hirschsprung’s,
VATER, Greek Anorectal Malformation Network).
Youth Rally helps teens who have a bowel or bladder dysfunction or ostomy prepare for independence and build a personal support network.
Victory Junction enriches the lives of children with serious illnesses by providing life-changing camping experiences that are exciting, fun and empowering, at no cost to children or their families.
The mission of The Center for Courageous Kids is to
uplift children who have life-threatening illnesses by creating experiences
year-round that are memorable, exciting, fun, build self-esteem, are physically
safe, and medically sound.
Camp John Marc offers Camp Courage which serves siblings of
children, teens and young adults who are living with a chronic illness, Camp
TLC which serves campers who have spina bifida, TLC Hispanic Family Camp which
serves Spanish speaking families who have a child who has spina bifida, and TLC
Family Camp which serves families who have a child who has spina bifida