Related Resources
The Comprehensive Neuromuscular Center at Cincinnati Children’s provides a list of resources that may be helpful to those with pediatric neuromuscular diseases.
- Andrew’s Buddies / Fight SMA: Fight SMA, known as “Andrew’s Buddies Corporation,” was created to accelerate the search for a treatment and cure for Spinal Muscular Atrophy (SMA), the No. 1 inherited cause of infant death.
- Cure CMD: Cure CMD provides Congenital Muscular Dystrophy resources, information and support to families, doctors and researchers.
- Charcot Marie Tooth (CMT) Association: The CMTA is a nonprofit organization whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT.
- Families of Spinal Muscular Atrophy (FSMA): Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure for SMA.
- Friedreich’s Ataxia Research Alliance (FARA): The Friedreich’s Ataxia Research Alliance (FARA) is a nonprofit organization dedicated to curing Friedreich’s Ataxia (FA).
- National Ataxia Foundation: The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.
- The Neuropathy Association: The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community. They provide support and education, advocate for patients’ interests and promote research into the causes of and cures for neuropathy.
- Parent Project Muscular Dystrophy: Parent Project Muscular Dystrophy (PPMD) is a nonprofit organization founded by parents of children with Duchenne and Becker Muscular Dystrophy.
- The United Mitochondrial Disease Foundation (UMDF): UMDF promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders and provides support to affected individuals and families.
