Researchers in the Heart Institute are focused on outcomes research, with the goal to strengthen the process and quality of care we provide to children and adolescents.

Our Quality of Life (QOL) Outcomes Research Group seeks to characterize the relationship between genetic, demographic, clinical and neuro-developmental, psychosocial and physical morbidity factors and QOL. Identifying these relationships allows clinicians to modify the medical care delivery system to significantly improve the lives of children with congenital and acquired heart disease and promote their success. 

Our work includes the creation of survey tools to monitor patient QOL, the identification of modifiable morbidity factors that affect QOL and the creation of predictive models that allow early intervention for factors that may affect patients’ QOL outcomes.